Quality of life in dementia care - differences in quality of life measurements performed by residents with dementia and by nursing staff
Quality of life in dementia care - differences in quality of life measurements performed by residents with dementia and by nursing staff
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DOI：
10.1080/13607863.2012.667782
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发表时间：
2012-01-01
影响因子：
3.4
通讯作者：
Wolf-Ostermann, Karin
中科院分区：
文献类型：
--
作者：
Graeske, Johannes;Fischer, Thomas;Wolf-Ostermann, Karin
目标：生活质量 (QoL) 是痴呆症护理的主要结果参数。自我评分被认为是评估生活质量的最佳方式，但员工评分也提供了有效的结果。特别是，自我评价和工作人员评价之间的差异代表性不足。目的是确定痴呆症患者的特征，以提高完成“阿尔茨海默病生活质量”(QoL-AD) 自评生活质量工具的可能性。此外，自评和工作人员评价的 QoL-AD 以及可能的影响因素之间设定了一定程度的一致性。方法：2010 年在柏林进行了一项横断面研究。使用QoL-AD工具，对痴呆症患者的自我评价和工作人员评价的生活质量进行了评估。结果：本研究项目纳入了104名居民（73.1%为女性，平均年龄：79.0岁，平均认知功能（MMSE）：11.5）。 49 名（47.1%）居民能够完成 QoL-AD 问卷。完成 QoL-AD 的预测因子是 MMSE 部分的“语言”。住院医师对他们的生活质量的评价明显高于护理人员。如果主要护士对生活质量进行评分，则会发现明显更好的一致性。结论：该研究产生了关于更好地理解生活质量测量的新发现。结果表明，只要有可能，进行自我评级是有用的。如果必须使用代理评级，则应仅由初级护士进行，以获得可靠的结果。
Objectives: Quality of life (QoL) is a major outcome parameter in dementia care. Self-ratings are considered the best way to evaluate QoL, but staff-ratings also provide valid results. In particular, the discrepancies between self-ratings and staff-ratings are underrepresented. The aim was to identify characteristics of people with dementia that improve the probability of completing a self rating QoL instrument on the 'Quality of Life Alzheimers' Disease' (QoL-AD). Additionally, a level of agreement was set between self-rated and staff-rated QoL-AD and possible influencing factors.Method: A cross-sectional study was conducted in 2010 in Berlin. Using the instrument QoL-AD, the self-and staff-rated QoL of people with dementia was assessed.Results: 104 residents (73.1% female, mean age: 79.0 years, mean cognitive function (MMSE): 11.5) were included in this research project. 49 (47.1%) residents were able to complete the QoL-AD questionnaire. A predictor to complete the QoL-AD was the MMSE-part 'language'. Residents rated their QoL as significantly higher than the nursing staff did. If the primary nurse rated the QoL, a significantly better agreement was identified.Conclusion: The study generated new findings concerning a better understanding of QoL measurements. The results suggest the usefulness of performing self-ratings whenever possible. If proxy-ratings have to be used, these should be performed by primary nurses only in order to get reliable results.