Temporal lobe epilepsy surgery: What do patients want to know?
Temporal lobe epilepsy surgery: What do patients want to know?
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DOI：
10.1016/j.yebeh.2011.07.038
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发表时间：
2011-11-01
影响因子：
2.6
通讯作者：
Bakken, Suzanne
中科院分区：
文献类型：
--
作者：
Choi, Hyunmi;Pargeon, Kim;Bakken, Suzanne
考虑脑外科手术的耐药颞叶癫痫患者必须做出复杂的治疗决策，包括权衡利弊。患者决策辅助工具，包含有关治疗干预措施的风险和益处的信息，增加患者的知识并促进患者和医生之间的共同决策。我们进行了五个焦点小组，以描述患者在做出RE手术的知情决定时需要的信息。20名接受TLE手术的患者描述了他们在决策过程中使用的信息，并评估了患者决策辅助的潜力，以帮助其他正在考虑手术的患者。专题分析揭示了经验（即通过推荐了解其他患者的经历）和事实（即个性化统计信息）两方面的信息需求。患者还就如何将这些信息传递给患者提出了建议。这些数据将加速患者决策辅助工具的开发，旨在帮助TLE患者对癫痫手术做出决策。(C) 2011爱思唯尔公司版权所有。
Patients with pharmacoresistant temporal lobe epilepsy (TLE) contemplating brain surgery must make a complex treatment decision involving trade-offs. Patient decision aids, containing information on the risks and benefits of treatment interventions, increase patient knowledge and facilitate shared decision making between patients and physicians. We conducted five focus groups to describe the information patients need to make informed decisions about RE surgery. Twenty patients who had undergone TLE surgery described the information used in their decision-making process, and evaluated the potential for a patient decision aid to assist other patients who are considering surgery. Thematic analysis revealed information needs that were both experiential (i.e., learning about other patients' experiences through testimonials) and factual (i.e., individualized statistical information). Patients also made suggestions on how this information should be delivered to patients. These data will accelerate the development of a patient decision aid designed to assist TLE patients in their decision making about epilepsy surgery. (C) 2011 Elsevier Inc. All rights reserved.