A Decision Aid Intervention for Family Building After Cancer: Developmental Study on the Initial Steps to Consider When Designing a Web-Based Prototype.
A Decision Aid Intervention for Family Building After Cancer: Developmental Study on the Initial Steps to Consider When Designing a Web-Based Prototype.
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DOI：
10.2196/20841
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发表时间：
2021-01-22
影响因子：
2.2
通讯作者：
Diefenbach M
中科院分区：
文献类型：
--
作者：
Benedict C;Dauber-Decker KL;King D;Hahn A;Ford JS;Diefenbach M
以患者为中心的护理的一个重要方面包括确保以患者为导向的资源是可用的、可理解的和对患者需求做出响应的。以用户为中心的设计是指基于同理心的框架和迭代设计方法，用于开发基于对用户需求、价值、能力和限制的深入理解的产品或解决方案。这项研究介绍了为完成性腺毒性癌症治疗的年轻女性开发患者资源原型所采取的步骤，以支持她们关于后续生育护理和家庭建设的决策。以用户为中心的设计实践被用于开发Roadmap to Parenthood，这是一个用于癌症后家庭建设的决策辅助(DA)网站。组建了一个多学科指导小组，并提供了投入。在整个开发过程中使用了来自国际患者DA协会和渥太华决策支持框架的指南。此外，还遵循了在患者多样性和健康素养方面制定健康数据分析的指导方针。系统和迭代地开发了《为人父母之路》发展议程网站原型。遵循了从最终用户的角度设计和开发解决方案的广泛过程。所采取的步骤包括确定用户需求的形成性工作；确定目标、格式和交付；设计过程(例如，人物角色、故事板、信息架构、用户旅程图和线框图)；以及内容开发。其他设计考虑因素解决了这一患者群体的独特需求，包括与这一主题相关的情感体验和决策环境，其中决策可以迭代地考虑，同时涉及多步骤过程。本研究中提出的设计策略描述了开发以用户为中心的资源的早期阶段的重要步骤，这将增强可用性测试和进一步设计修改的起点。未来的研究将对DA和一种规划工具进行试点测试，并评估癌症后家庭建设决策冲突的改善情况。与以患者为中心的医疗保健方法一致，这里描述的策略可以推广并应用于其他患者资源和临床环境的开发，以优化可用性、同理心和用户参与度。
An important aspect of patient-centered care involves ensuring that patient-directed resources are usable, understandable, and responsive to patients’ needs. A user-centered design refers to an empathy-based framework and an iterative design approach for developing a product or solution that is based on an in-depth understanding of users’ needs, values, abilities, and limitations. This study presents the steps taken to develop a prototype for a patient resource for young women who have completed treatment for gonadotoxic cancer to support their decision making about follow-up fertility care and family building. User-centered design practices were used to develop Roadmap to Parenthood, a decision aid (DA) website for family building after cancer. A multidisciplinary steering group was assembled and input was provided. Guidelines from the International Patient DA Society and the Ottawa Decision Support Framework were used throughout the development process. In addition, guidelines for developing health DAs with respect to patient diversity and health literacy were also followed. The Roadmap to Parenthood DA website prototype was systematically and iteratively developed. An extensive process of designing and developing solutions from the perspective of the end user was followed. The steps taken included formative work to identify user needs; determining goals, format, and delivery; design processes (eg, personas, storyboards, information architecture, user journey mapping, and wireframing); and content development. Additional design considerations addressed the unique needs of this patient population, including the emotional experiences related to this topic and decision-making context wherein decisions could be considered iteratively while involving a multistep process. The design strategies presented in this study describe important steps in the early phases of developing a user-centered resource, which will enhance the starting point for usability testing and further design modifications. Future research will pilot test the DA and a planning tool, and evaluate improvement in the decisional conflict regarding family building after cancer. Consistent with a patient-centered approach to health care, the strategies described here may be generalized and applied to the development of other patient resources and clinical contexts to optimize usability, empathy, and user engagement.
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