Parent peer advocacy, information and refusing disability discourses
Parent peer advocacy, information and refusing disability discourses
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DOI：
10.1080/1177083x.2013.818042
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发表时间：
2013-01-01
影响因子：
1.6
通讯作者：
Legge, M.
中科院分区：
文献类型：
--
作者：
Bell, M.;Fitzgerald, R.;Legge, M.
父母同侪倡导是新西兰父母对父母的一种独特的赋权关系，分享在抚养残疾、慢性病或有特殊需要的儿童过程中获得的经验知识，并利用伙伴关系和参与的支助理想。该支助组织根据残疾家庭遇到的问题，为有缺陷、疾病和遗传差异的家庭牵线搭桥。在本文中，我们讨论了禁用的历史背景下提供的信息作为宣传，矛盾的组织差异，并在未来的父母寻求父母同伴的支持上升。这些主题领域使我们能够创建一个分析框架，用于下一阶段的实证研究与父母对父母新西兰。
Parent peer advocacy is a distinct type of empowering relationship practised in Parent to Parent New Zealand that shares experiential knowledge gained from raising a child with disability, chronic illness or special needs and draws on both partnership and participation ideals of support. This support organisation matches families with impairment, illness and genetic difference in light of issues they encounter as families with disability. In this paper we discuss disabling historical contexts countered by the provision of information as advocacy, ambivalence towards difference in the organisation, and the rise in prospective parents seeking parent peer support. These thematic areas allow us to create an analytical framework to be used in the next phase of an empirical study with Parent to Parent New Zealand.