SATISFICING DEATH: Ageing and end-of-life preparation among transgender older Americans.

SATISFICING DEATH: Ageing and end-of-life preparation among transgender older Americans.
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满意的死亡:跨性别老年美国人的老龄化和临终准备。

DOI:
10.1111/1467-9566.13741
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发表时间:
2023
影响因子:
2.9
通讯作者:
Lampe,NikM
Lampe,NikM
中科院分区:
医学2区
文献类型:
--
作者:
Lampe,NikM

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“好死”是一种规范的生活和死亡的意识形态,它可以让个人获得对死亡的认识、接受和准备。近年来,“好死”引起了研究人员、临床医生和政策制定者的注意。之前的社会学研究已经揭示了对善死的细致入微的看法,然而,对于边缘化社区如何重建他们自己的善死理想,以应对结构性和制度性的不平等,却很少有探索。利用来自47个深度访谈的数据,我研究了跨性别老年人如何通过提前护理计划来感知和计划老龄化和临终体验。我的分析表明,由于现有的不平等,变性老年人重新评估了自己的规范理想的好死观念。因此,他们积极地重建一种足以满足他们生命终结需求的个性化死亡意识形态。我进一步提出了“满意死亡”的概念,作为一个边缘化社区的个人重新评估和重建自己的好死意识形态的过程,这种意识形态是足够的,同时使用资源策略来改善自己现有的社会条件。这些发现强调了向跨性别社区提供肯定的临终关怀、支持和资源的迫切需要。
Agood death—a normative ideology of living and dying well that may allow an individual to gain awareness, acceptance, and preparation for death—has captured the attention of researchers, clinicians, and policymakers in recent years. Prior sociological research has uncovered nuanced perspectives of a good death, yet there has been minimal exploration into how marginalised communities reconstruct their own ideals of a good death in response to structural and institutional inequities. Utilising data from 47 in‐depth interviews, I examine how transgender older adults perceive and plan for ageing and end‐of‐life experiences through advance care planning. My analysis reveals transgender older adults’ reevaluated notions of a normatively desirable good death for themselves due to existing inequities. Consequently, they actively reconstruct a personalised ideology of death that is adequate enough to meet their end‐of‐life needs. I further offer the conceptualisation ofSATISFICING DEATH, as a process of individuals from marginalised communities reevaluating and reconstructing their own ideologies of a good death that is adequate enough while using resourceful strategies to improve existing social conditions for themselves. These findings highlight the critical need to provide affirming end‐of‐life care, support, and resources to transgender communities.
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发表时间: 2022-01
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