Transportation innovation to aid Parkinson disease trial recruitment
Transportation innovation to aid Parkinson disease trial recruitment
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DOI：
10.1016/j.conctc.2019.100449
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发表时间：
2019-12-01
影响因子：
1.5
通讯作者：
Simon, David K.
中科院分区：
文献类型：
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作者：
Frank, Samuel;Berk, Sarah;Simon, David K.
在参加临床试验的障碍中，往返研究地点的交通可能是一个突出的问题。帕金森氏症患者的特殊情况增加了障碍，包括痴呆、驾驶能力丧失、药物治疗时机、活动能力下降的影响以及肠道和膀胱问题。我们试图通过第三方拼车服务来预先安排乘车，从而减轻部分交通负担。设立这个试验项目是为了评估可行性，并探讨减少运输负担是否有可能促进研究的参与。三分之一的学术网站成功地建立了这项服务，并就这项服务的影响对参与者进行了调查。总的来说，选择拼车服务的研究参与者认为，这一过程更容易，压力更小。大多数参与者都认为，如果提供交通工具，他们更有可能参加另一项研究。这一短期试点干预表明，参与者对拼车服务感到满意，因为它有助于满足他们的医疗运输需求，但还需要更大规模的研究，包括收集有关保留的数据。
Among the barriers to participation in clinical trials, transportation to and from study sites may be a prominent issue. Patients with Parkinson's disease have unique circumstances that add to the barriers including dementia, loss of driving ability, timing of medications, impact of reduced mobility, and bowel and bladder concerns. We sought to alleviate some of the burden of transportation by setting up pre-arranged rides through a third-party ride sharing service. This pilot project was established to assess feasibility and to explore the possibility that reducing the transportation burden may enhance participation in studies. One out of three academic sites was successful in setting up this service, and surveyed participants on the impact of this service. In general, study participants who opted into the ride-sharing service felt it made the process easier and less stressful. Most participants agreed that they are more likely to participate in another study if transportation was provided. This short-term pilot intervention suggests that participants were satisfied with a ride sharing service to help with their medical transportation needs, but larger studies that include data collection about retention are needed.