Are videoconferenced consultations as effective as face-to-face consultations for hereditary breast and ovarian cancer genetic counseling?
Are videoconferenced consultations as effective as face-to-face consultations for hereditary breast and ovarian cancer genetic counseling?
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DOI：
10.1097/gim.0b013e3182217a19
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发表时间：
2011-11-01
影响因子：
8.8
通讯作者：
Tucker, Katherine M.
中科院分区：
文献类型：
--
作者：
Zilliacus, Elvira M.;Meiser, Bettina;Tucker, Katherine M.
目的：视频会议越来越多地用于向外展地区提供遗传性乳腺癌和卵巢癌的家庭癌症服务。本研究比较了遗传性乳腺癌和卵巢癌遗传咨询的有效性和可接受性，通过视频会议（以下简称为“远程遗传学”）。研究方法：106名妇女看到远程遗传学和89名妇女看到面对面完成自我管理的问卷之前，1个月后，遗传咨询。远程遗传学咨询涉及遗传临床医生通过远程遗传学除了当地的遗传咨询师与病人在场。结果如下：在获得的知识方面，远程遗传学和面对面遗传咨询之间没有发现显著差异（P = 0.55），对遗传咨询服务的满意度（P = 0.76），癌症特异性焦虑（P = 0.13）、广泛性焦虑（P = 0.42）、抑郁（P = 0.96）、遗传临床医生的共情感知（P = 0.13）和遗传咨询师的共情感知（P = 0.12）。远程遗传学在满足患者期望（P = 0.009）和促进个人控制感（P = 0.031）方面的表现明显优于面对面咨询。结论：远程遗传学似乎是一个可接受的和有效的方法提供遗传咨询服务的遗传性乳腺癌和卵巢癌的服务不足的地区。Genet Med 2011：13（11）：933-941.
Purpose: Videoconferencing is increasingly used to deliver family cancer services for hereditary breast and ovarian cancer to outreach areas. This study compared the effectiveness and acceptability of genetic counseling for hereditary breast and ovarian cancer through videoconferencing (hereafter referred to as "telegenetics"). Methods: One hundred six women seen by telegenetics and 89 women seen face-to-face completed self-administered questionnaires before, and 1 month after, genetic counseling. Telegenetics consultations involved a genetic clinician via telegenetics in addition to a local genetic counselor present with the patient. Results: No significant differences were found between telegenetics and face-to-face genetic counseling in terms of knowledge gained (P = 0.55), satisfaction with the genetic counseling service (P = 0.76), cancer-specific anxiety (P = 0.13), generalized anxiety (P = 0.42), depression (P = 0.96), perceived empathy of the genetic clinician (P = 0.13), and perceived empathy of the genetic counselor (P = 0.12). Telegenetics performed significantly better than face-to-face counseling in meeting patients' expectations (P = 0.009) and promoting perceived personal control (P = 0.031). Conclusion: Telegenetics seems to be an acceptable and effective method of delivering genetic counseling services for hereditary breast and ovarian cancer to underserved areas. Genet Med 2011:13(11):933-941.