Did I really want to know this? Pregnant women's reaction to detection of a soft marker during ultrasound screening
Did I really want to know this? Pregnant women's reaction to detection of a soft marker during ultrasound screening
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DOI：
10.1016/j.pec.2009.12.011
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发表时间：
2010-10-01
影响因子：
3.5
通讯作者：
Sarkadi, Anna
中科院分区：
文献类型：
--
作者：
Ahman, Annika;Runestam, Karin;Sarkadi, Anna
目的：为了调查妇女的期望常规超声和经验时，发现软标记：什么披露的意思，它如何影响他们，他们如何经历的信息，以及为什么他们做或不选择bronchocentries.Design：半结构化的，深入的访谈进行了11名妇女25-30周的怀孕，7-13周后发现一个软标记。女性对扫描的潜力缺乏了解，软标记的检测会产生强烈的情绪反应，女性认为这些反应可以通过预先了解潜在的发现来缓解。与扫描有关的信息被认为是不充分的。关于子宫颈穿刺术的决定是受残疾的态度，胎儿损失的焦虑，由于程序，需要确定的诊断测试，和合作伙伴的opinions.Conclusions：妇女感到震惊的意外，有时不必要的信息染色体畸变的风险升高，他们缺乏任何准备。由于这一事件往往有长期的影响，对怀孕，模型的信息，是有效的，在促进知情decisions是imperative.Practice的影响：妇女和他们的合作伙伴需要相关的信息之前，并与超声扫描，能够作出明智的选择。(C)2010爱思唯尔爱尔兰有限公司版权所有。
Objective: To investigate women's expectations of routine ultrasound and experiences when soft markers were discovered: what the disclosure meant, how it affected them, how they experienced the information given and why they did or did not choose amniocentesis.Design: Semi-structured, in-depth interviews were conducted with 11 women 25-30 weeks into the pregnancy, 7-13 weeks after the discovery of a soft marker.Findings: Women lacked knowledge about the potential of the scan and detection of soft markers created strong emotional reactions that women thought could have been alleviated by prior information about potential findings. Information in connection with the scan was perceived as insufficient. Decision about amniocentesis was affected by attitudes to disability, anxiety about fetal loss due to the procedure, need for certainty by a diagnostic test, and partner's opinion.Conclusions: Women were shocked by the unexpected and sometimes unwanted information on elevated risk for a chromosomal aberration for which they lacked any preparation. Because this event often has long-lasting effects on the pregnancy, models of information that are efficient in promoting informed decisions are imperative.Practice implications: Both women and their partners need relevant information before and in connection with ultrasound scan to be able to make informed choices. (C) 2010 Elsevier Ireland Ltd. All rights reserved.