Predictors of unmet needs and family debt among children and adolescents with an autism spectrum disorder: Evidence from Ireland
Predictors of unmet needs and family debt among children and adolescents with an autism spectrum disorder: Evidence from Ireland
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DOI：
10.1016/j.healthpol.2020.01.005
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发表时间：
2020-03-01
期刊：
影响因子：
3.3
通讯作者：
O'Neill, Ciaran
中科院分区：
文献类型：
--
作者：
Roddy, Aine;O'Neill, Ciaran
自闭症谱系障碍（ASDs）是一种终身的神经发育疾病，受影响的个人及其家庭需要不同强度的服务和支持。越来越多的证据表明，早期干预可能改善长期结果。这篇论文的目的是要找出能够解释养育自闭症儿童的家庭之间在特定需求未被满足和/或债务经历方面的差异的因素。分析基于一项更大的研究收集的数据，该研究调查了2014/2015年爱尔兰195个家庭222名年龄在2-18岁之间的儿童的自闭症谱系障碍经济学。家长报告的调查结果显示，超过74%的儿童在过去12个月内没有接受过一项或多项服务。每个家庭每年的平均债务为3259美元。回归分析显示，有两个或两个以上自闭症儿童的家庭比只有一个自闭症儿童的家庭更有可能经历未满足的需求，并因为孩子的状况而招致债务。研究表明，有很大程度的未满足需求和经济困难，这在与自闭症相关的债务水平上很明显，这可能会使当前满足的需求在未来变得不可持续。能力和地域不平等问题也很明显，需要作出政策回应。(C) 2020 Elsevier B.V.版权所有
Autism Spectrum Disorders (ASDs) are a life-long neurodevelopmental condition where individuals affected and their families require varying intensities of services and supports. A growing body of evidence provides consensus that early intervention may improve long-term outcomes. The purpose of the paper is to identify the factors that explain variations between families raising a child/children with an ASD in their experience of specific unmet needs and/or experience of debt. Analysis was based on data collected as part of a larger study that examined the economics of autism spectrum disorder in Ireland among 195 families with 222 children aged between 2-18 years of age in 2014/2015. The findings from parental reported responses show over 74 % of children did not receive one or more services in the previous 12 months. Average debt per year per family was (sic)3259. Regression analyses showed that families that had two or more children with an ASD were more likely to experience unmet needs and incur debt specifically because of the child's condition than families with one child with an ASD. The study shows there is a significant level of unmet need and economic hardship, as evident in the level of ASD related debt which may make current met needs unsustainable in the future. Issues of capacity and geographic inequity that warrant a policy response were also evident. (C) 2020 Elsevier B.V. All rights reserved.