Ten Eleven things to facilitate participation of underrepresented groups in headache medicine research.

Ten Eleven things to facilitate participation of underrepresented groups in headache medicine research.
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十一件事可以促进代表性不足的群体参与头痛医学研究。

DOI:
10.1111/head.14124
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发表时间:
2021-06
期刊:
影响因子:
5
通讯作者:
Starling, Amaal J.
Starling, Amaal J.
中科院分区:
医学3区
文献类型:
--
作者:
Begasse de Dhaem, Olivia;Kiarashi, Jessica;Armand, Cynthia E.;Charleston, Larry;Szperka, Christina L.;Lee, Yeonsoo S.;Rajapakse, Thilinie;Seng, Elizabeth K.;VanderPluym, Juliana H.;Starling, Amaal J.

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头痛是就医的主要原因,但仍未得到充分诊断。 1 头痛疾病非常普遍且致残。仅偏头痛就影响了 10 亿人,是全球第二大致残原因。 2 关于头痛疾病如何影响服务不足的人群以及最重要的是如何解决这一问题,仍然缺乏信息。美国的偏头痛患病率研究表明,美洲原住民的偏头痛患病率最高,其次是美国白人、美国黑人、西班牙裔美国人和亚裔美国人。 3, 4 美国黑人被诊断患有偏头痛的可能性较小,部分原因是他们不太可能认可偏头痛的完整标准,也不太可能进入医疗系统接受治疗。 3, 5 与白人相比,黑人在全国范围内接受的头痛疾病护理最少,并且不太可能接受偏头痛门诊护理。 6, 7 尽管自我报告的疼痛情况与白人患者相似,但黑人患者服用止痛药的可能性较小。 8-10 据我们所知,头痛研究人员没有解决头痛临床试验中纳入不同人群的挑战的例子。作者知道,仅发表了三项专门研究头痛医学中种族健康差异的研究。 11-13 这些研究可归类为第一代健康差异研究。 14, 15 此外,还有一篇叙述性文章讨论了非裔美国男性在头痛医学方面的公平问题。 1 在头痛医学文献之外找到了指导健康差异研究的框架;例如,国家老龄化研究所在其网站上开发了一个交互式、易于使用的 NIA Health Disparitie 研究框架。 14-16缩写:AA,非裔美国人; AHS,美国头痛协会; AMF,美国偏头痛基金会; BIPOC、黑人、原住民和有色人种; CBPR,基于社区的参与性研究; HCP、医疗保健专业人员; NIH,国立卫生研究院。
Headache is a leading reason for medical consultation and yet remains underdiagnosed. 1 Headache diseases are highly prevalent and disabling. Migraine alone affects 1 billion people and is the second leading cause of disability worldwide. 2 There still remains a dearth of information surrounding how the headache diseases affect underserved populations and most importantly how this can be addressed. Migraine prevalence studies based in the United States indicate that the prevalence is highest in Native Americans, followed by White Americans, Black Americans, Hispanics, and Asian-Americans. 3, 4 Black Americans are less likely to be diagnosed with migraine, in part because they are less likely to endorse full criteria for migraine, and are also less likely to access the medical system for treatment. 3, 5 Black men receive the least care for headache diseases nationwide and are less likely to present for ambulatory care for migraine compared with Whites. 6, 7 Black patients are less likely to be given pain medications than White patients despite similar self-reports of pain. 8-10 To our knowledge, there are no examples of headache researchers addressing the challenges to inclusion of diverse populations in headache clinical trials. The authors are aware of only three research studies published that specifically examined for racial health disparities in headache medicine. 11-13 These studies could be classified as first-generation health disparity research. 14, 15 In addition, there is one narrative article that addresses the issues of equity of African-American men in headache medicine. 1 There are frameworks to guide health disparity research found outside headache medicine literature; for example, the National Institute of Aging developed an interactive easy-to-use NIA Health Disparitie s Research Framework on their website. 14-16Abbreviations: AA, African American; AHS, American Headache Society; AMF, American Migraine Foundation; BIPOC, Black, Indigenous, and people of color; CBPR, community-based participatory research; HCPs, health-care professionals; NIH, National Institute of Health.
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