Definitely Mixed Feelings: The Effect of COVID-19 on Bereavement in Parents of Children Who Died of Cancer
Definitely Mixed Feelings: The Effect of COVID-19 on Bereavement in Parents of Children Who Died of Cancer
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DOI：
10.1016/j.jpainsymman.2020.08.035
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发表时间：
2020-11-01
影响因子：
4.7
通讯作者：
Snaman, Jennifer M.
中科院分区：
文献类型：
--
作者：
Helton, Gabrielle;Wolfe, Joanne;Snaman, Jennifer M.
上下文2019年冠状病毒病（COVID-19）影响了日常生活的大部分要素，包括儿童死亡后的支持提供以及父母丧亲之痛的经历。目标。本研究旨在研究COVID-19如何影响其子女在大流行前死于癌症的父母的丧亲经历。父母谁参加了调查为基础的研究，检查早期悲伤的经验被邀请完成半结构化的采访。在采访中，重点是检查在孩子去世后的头几年内，父母和其他家庭成员目前的支持，参与者被问及COVID-19如何影响他们的生活和丧亲之痛。33名符合条件的父母中有15名完成了访谈; 14名是白色和非西班牙裔，5名是男性。父母在其子女死亡后平均19个月（范围12-34）参加。在13次采访中谈到了COVID-19。11个代码被用来描述访谈片段;最常用的代码是支持的变化，没有效果，熟悉的不确定性/科普能力，和改变与护理/研究团队的联系。父母们发现了多种不同的方式--积极的、消极的和中性的--COVID-19如何影响他们的丧亲之痛。许多父母评论说，由于无法与家人联系或参加面对面的支持小组，他们感到更加孤立，而其他人则承认，他们的经历使他们处于独特的地位，能够科普当前局势的不确定性。临床医生必须找到创新的方法，在这个独特的时期与失去亲人的父母联系并提供支持。(C)2020年美国临终关怀和姑息医学学院。爱思唯尔公司出版All rights reserved.
Context. Coronavirus disease 2019 (COVID-19) has impacted most elements of daily life, including the provision of support after a child's death and the experience of parental bereavement.Objectives. This study aims to examine ways in which COVID-19 has affected the bereavement experiences of parents whose children died of cancer before the pandemic.Methods. Parents who participated in a survey-based study examining the early grief experience were invited to complete a semistructured interview. During the interview, which focused on examining the current support for parents and other family members within the first several years after the child's death, participants were asked how COVID-19 has impacted their life and bereavement.Results. Fifteen of 33 eligible parents completed the interview; 14 were white and non-Hispanic, five were males. Parents participated an average of 19 (range 12-34) months after their child's death. COVID-19 was addressed in 13 interviews. Eleven codes were used to describe interview segments; the most commonly used codes were change in support, no effect, familiarity with uncertainty/ability to cope, and change in contact with care/research team.Conclusion. Parents identified multiple and variable ways-both positive, negative, and neutral-how COVID-19 has affected their bereavement. Many parents commented on feeling more isolated because of the inability to connect with family or attend in-person support groups, whereas others acknowledged their experience has made them uniquely positioned to cope with the uncertainty of the current situation. Clinicians must find innovative ways to connect with and support bereaved parents during this unique time. (C) 2020 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.