Important Considerations for ADHD 'Patient and Public' Involvement and Engagement in Research.
Important Considerations for ADHD 'Patient and Public' Involvement and Engagement in Research.
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DOI：
10.18103/mra.v11i10.4477
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发表时间：
2023-10
期刊：
影响因子：
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通讯作者：
Russell A
中科院分区：
文献类型：
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作者：
French B;Price A;Salimi A;Russell A
在这封信中，我们总结了从注意力缺陷多动障碍（ADHD）研究项目中学习的要点，这些项目将患者和公众的参与和参与（PPIE）作为研究过程的关键部分。我们分享我们在与患有ADHD的PPIE小组合作开展研究方面的经验，作为研究人员的最佳建议。我们的目的是强调在ADHD研究中包括生活经验的重要性，分享学习并强调ADHD患者在注意力集中，组织和时间管理方面可能经历的一些（潜在的无形）功能差异。具体来说，这些可能会影响包括ADHD患者在内的PPIE小组的工作实践。
In this letter, we summarise key points of learning from research projects on attention deficit hyperactivity disorder (ADHD) that have had patient and public involvement and engagement (PPIE) as a key part of the research process. We share learning from our experiences in delivering research working with PPIE groups with ADHD, as top tips for researchers. Our aim is to highlight the importance of including lived-experience in ADHD research, share learning and highlight some of the (potentially invisible) differences in functioning that someone with ADHD can experience in relation to attentional focus, organisation, and time management. Specifically, how these might impact working practices of PPIE groups that include people with ADHD.