Parent or nurse? The experience of being the parent of a technology-dependent child
Parent or nurse? The experience of being the parent of a technology-dependent child
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DOI：
10.1111/j.1365-2648.2005.03522.x
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发表时间：
2005-09-01
影响因子：
3.8
通讯作者：
Callery, P
中科院分区：
文献类型：
--
作者：
Kirk, S;Glendinning, C;Callery, P
瞄准！本文报告了一项研究，探讨父母的经验，照顾孩子谁是依赖于医疗技术，特别是执行自己的孩子的临床程序。由于医疗进步和政府的政策，在社区环境中出现了一批持续需要医疗技术支持的儿童。照顾这些儿童对父母有着重大的社会和情感影响，因为他们需要专门的重症监护。获得适当的和协调的家庭支持服务是有问题的。扎根理论技术，并进行了深入的访谈与24名儿童的父母。父母的陈述表明，他们对养育子女的理解是由他们在照顾子女方面的作用的性质以及医疗设备和人员对家庭的改造所形成的。他们形容自己的角色既有养育子女的作用，也有护理方面的作用。父母管理这种紧张局势，并定义他们的角色和关系，他们的孩子主要是一个父母的区别父母照顾和其基础知识的专业人士，特别是护士。养育一个依赖技术的孩子改变了养育的意义。专业人士需要认识到，提供护理对父母来说有很大的情感层面，他们需要有机会讨论他们对养育子女的感受，以及这对他们的养育身份和他们与孩子的关系意味着什么。一个关键的专业护理角色将是给予情感支持和支持父母的应对策略。父母对护士的看法提出了一些问题，如护士的护理是否适合儿童和家庭的需要，父母的专业知识是否得到认可。
Aim. This paper reports a study exploring parents' experiences of caring for a child who is dependent on medical technology, and in particular of performing clinical procedures on their own children.Background. A group of children with a continuing need for the support of medical technology have emerged in community settings as a result of medical advances and government policies. Caring for these children has a significant social and emotional impact on parents, because of their specialized and intensive care needs. Obtaining appropriate and coordinated home support services is problematic.Method. Grounded theory techniques were used, and in-depth interviews were conducted with the parents of 24 children.Findings. Parents' accounts revealed that their constructions of parenting were shaped by the nature of their role in caring for their child and by the transformation of their homes by medical equipment and personnel. They described themselves as having a role that had both parenting and nursing dimensions. Parents managed this tension and defined their role and relationship to their child to be primarily one of parenting by differentiating parental care-giving and its underpinning knowledge from that of professionals, particularly nurses.Conclusion. Parenting a technology-dependent child alters the meaning of parenting. Professionals need to recognize that providing care has a substantial emotional dimension for parents, and that they need opportunities to discuss their feelings about caregiving and what it means for their parenting identity and their relationship with their child. A key professional nursing role will be giving emotional support and supporting parents' coping strategies. Parents' perceptions of nurses raise questions about whether nurses' caregiving is individualized to the needs of the child and family, and whether parental expertise is recognized.