Mobile Technology to Monitor and Support Health and Well-Being: Qualitative Study of Perspectives and Design Suggestions From Patients Undergoing Hematopoietic Cell Transplantation.
Mobile Technology to Monitor and Support Health and Well-Being: Qualitative Study of Perspectives and Design Suggestions From Patients Undergoing Hematopoietic Cell Transplantation.
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DOI：
10.2196/49806
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发表时间：
2023-08-31
影响因子：
2.2
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中科院分区：
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在美国，造血干细胞移植(HCT)每年超过22,000例。由于HCT的过程要求高且时间密集，患者和家庭护理伙伴面临着涉及他们的健康和福祉的独特挑战。积极心理学干预(PPI)可能提供潜在的解决方案，以帮助促进健康和福祉。这项研究旨在探索和了解患者在HCT急性期使用Roadmap 2.0应用程序的体验和感知，特别是其PPI功能。从一项正在进行的随机对照试验中，17名HCT患者被招募参加2022年10月至2023年1月在中西部各州的一个大型学术医疗中心进行的半结构化定性访谈。采用定性描述的方法，面谈或通过Zoom进行。采用恒定对比分析的方法进行数据分析。遵循了报告定性研究的综合标准(COREQ)指南。大多数参与者报告说，Roadmap 2.0易于使用，并且能够跟踪他们的健康数据(例如，步数、情绪、睡眠；9/17)。关于急性期PPI的使用，88%的参与者报告有兴趣参与PPI，特别是Pleasant活动计划(11/17)，然后是感恩日记活动(7/17)。此外，与会者就适应路线图2.0提出了建议。主要的建议是(1)“共同工作：需要二元参与”，(2)“与其他患者的联系”，以及(3)“营养支持方面的差距”。参与者(10/17)表达了护理者参与治疗相关管理以外的活动对于维持健康的患者-护理者二元关系的重要性。他们还表达了希望与其他接受HCT的患者建立联系的愿望，主要是为了比较经验和讨论诸如症状管理等主题(8/17)。最后，与会者指出了HCT过程中营养支持方面的差距，并表示有兴趣采取干预措施，通过教育和通知提醒促进健康饮食(9/17)。参与者公开表示，他们渴望参与研究，促进与他们的照顾者以及其他HCT患者的联系和积极关系。他们强调了获得营养支持或指导的重要性，并强调了利用移动技术加强这些集体努力的潜在好处。ClinicalTrials.gov NCT04094844；https://clinicaltrials.gov/study/NCT04094844 rr2-10.2196/10.2196
In the United States, hematopoietic stem cell transplant (HCT) surpasses 22,000 procedures annually. Due to the demanding and time-intensive process of an HCT, patients and family care partners face unique challenges involving their health and well-being. Positive psychology interventions (PPIs) may offer potential solutions to help boost health and well-being. This study aimed to explore and understand patients’ experiences and perceptions about the use of the Roadmap 2.0 app, specifically its PPI features, during the acute phase of HCT. From an ongoing randomized controlled trial, HCT patients (n=17) were recruited to participate in semistructured qualitative interviews between October 2022 and January 2023 within a large academic medical center in the Midwestern states. Using a qualitative descriptive approach, interviews were conducted in person or via Zoom. The data were analyzed through constant comparative analysis. The Consolidated Criteria for Reporting Qualitative Research (COREQ) guidelines were followed. The majority of the participants reported Roadmap 2.0 as easy to use and enjoyed the ability to track their health data (eg, steps, mood, sleep; 9/17). Regarding the use of PPIs during the acute phase of treatment, 88% of the participants reported interest in participating in PPIs, specifically the Pleasant Activity Scheduling (11/17) followed by Gratitude Journaling (7/17) activities. Additionally, participants provided recommendations on adapting Roadmap 2.0. The major recommendations were (1) “Working Together: Need for Dyadic Involvement,” (2) “Connectivity with Other Patients,” and (3) “Gap in Nutritional Support.” Participants (10/17) expressed the importance of caregiver involvement in activities beyond treatment-related management for maintaining healthy patient-caregiver dyadic relationships. They also expressed their desire for connectivity with other patients undergoing HCT, primarily for comparing experiences and discussing topics such as symptom management (8/17). Lastly, participants identified a gap in nutritional support during the HCT process and expressed interest in an intervention that could promote healthy eating through education and notification reminders (9/17). Participants openly expressed their eagerness to participate in research studies that foster connection and positive relationships with their caregivers as well as with other HCT patients. They emphasized the significance of having access to nutritional support or guidance and highlighted the potential benefits of using mobile technology to enhance these collective efforts. ClinicalTrials.gov NCT04094844; https://clinicaltrials.gov/study/NCT04094844 RR2-10.2196/19288