A Population-Based Exploration of the Social Implications Associated with Cleft Lip and/or Palate.
A Population-Based Exploration of the Social Implications Associated with Cleft Lip and/or Palate.
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DOI：
10.1097/gox.0000000000001373
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发表时间：
2017-06
期刊：
影响因子：
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通讯作者：
Marcus JR
中科院分区：
文献类型：
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作者：
Glener AD;Allori AC;Shammas RL;Carlson AR;Pien IJ;Aylsworth AS;Meyer R;Pimenta L;Strauss R;Watkins S;Marcus JR
唇腭裂（CL/P）是一种社会耻辱，通常会导致心理社会压力。本研究的目的是考虑与自我报告的心理社会压力方面的裂缝表型和年龄的关联。分别通过北卡罗来纳州出生缺陷监测计划和北卡罗来纳州出生记录确定1997年至2003年出生的非综合征CL/P儿童和未受影响儿童。CL/P儿童的心理社会问题通过一个更大的调查的29个问题的子集进行了评估。根据学龄和唇裂表型（唇裂伴/不伴齿槽裂，CL ± A;单纯腭裂，CP;或唇裂伴腭裂，CL + P）分析反应。返回了176名CL/P儿童和333名未受影响的儿童的调查。与未受影响儿童相比，4/29个问题的CL ± A回答不同，7/29个问题的CP回答不同，8/29个问题的CL + P回答不同（P < 0.05）。当按学龄分层时，小学、初中和高中的CL/P儿童与未受影响的儿童分别有1/29、7/29和2/29的问题不同。中学年龄的CL/P儿童更容易受到审美问题，欺凌，友谊和社会交往的困难。与CL ± A或CP儿童相比，CL + P儿童报告了更严重的美学相关问题，但与CP儿童相比，他们经历了类似的语言相关困扰。与CL/P相关的社会影响在中学期间最为明显，在小学和高中期间则不那么明显。这一信息确定了旨在减少对性剥削/性剥削的污名化的社会改善领域。
Clefts of the lip and/or palate (CL/P) carry a social stigma that often causes psychosocial stress. The purpose of this study was to consider the association of cleft phenotype and age with self-reported aspects of psychosocial stress. Children with nonsyndromic CL/P and unaffected children born between 1997 and 2003 were identified through the North Carolina Birth Defects Monitoring Program and North Carolina birth records, respectively. The psychosocial concerns of children with CL/P were assessed via a 29-question subset of a larger survey. Responses were analyzed according to school age and cleft phenotype (cleft lip with/without cleft alveolus, CL ± A; cleft palate only, CP; or cleft lip with cleft palate, CL + P). Surveys were returned for 176 children with CL/P and 333 unaffected children. When compared with unaffected children, responses differed for CL ± A in 4/29 questions, for CP in 7/29 questions, and for CL + P in 8/29 questions (P < 0.05). When stratified by school age, children with CL/P in elementary, middle, and high school differed from unaffected children by 1/29, 7/29, and 2/29 questions, respectively. Middle school–aged children with CL/P were more affected by aesthetic concerns, bullying, and difficulties with friendship, and social interaction. Children with CL + P reported more severe aesthetic-related concerns than children with CL ± A or CP but experienced similar speech-related distress as children with CP only. Social implications associated with CL/P are most pronounced during middle school, and less so during elementary and high school. This information identifies areas of social improvement aimed at reducing the stigma of CL/P.