The Effects of COVID-19 Home Confinement in Dementia Care: Physical and Cognitive Decline, Severe Neuropsychiatric Symptoms and Increased Caregiving Burden
The Effects of COVID-19 Home Confinement in Dementia Care: Physical and Cognitive Decline, Severe Neuropsychiatric Symptoms and Increased Caregiving Burden
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DOI：
10.1177/1533317520976720
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发表时间：
2020-01-01
影响因子：
3.4
通讯作者：
Carvalho, Joana
中科院分区：
文献类型：
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作者：
Borges-Machado, Flavia;Barros, Duarte;Carvalho, Joana
目的：本研究旨在从非正式照顾者的角度分析家庭禁闭对神经认知障碍（NCD）患者的影响，并探讨家庭禁闭对NCD患者的养育负担的影响。方法：通过电话采访了36名来自“身心锻炼计划”的NCD患者（74.28 ± 6.76岁，66.7%为女性）的照顾者（64.94 ± 13.54岁，41.7%为女性）。采用Barthel指数（BI）评估护理人员的日常生活活动（ADL）独立能力，神经精神量表（NPI）评估神经精神症状，CarerQol-7 D/ CarerQol-VAS评估护理人员的主观负担/幸福感（p = 0.003）和NPI总分增加（MD = 5.72; 95% CI：1.19至10.25，p = 0.015）。至于照顾者，结果也显示了增加的抚养负担（MD = -0.17; 95%CI：-0.27至-0.08; p = 0.001）和他们的幸福感下降（p = 0.015）。讨论：COVID-19危机揭示了为未来危机寻找解决方案和设计应急计划的必要性，以确保对痴呆症抚养者的适当持续支持并减轻照顾者的负担。
Purpose:This study aims to analyze home confinement impact on individuals with neurocognitive disorders (NCD) through informal caregiver's perspective and examine how it has affected caregiving burden.Methods:Thirty-six caregivers (64.94 +/- 13.54 years, 41.7% female) of individuals with NCD (74.28 +/- 6.76 years, 66.7% female) selected from the Body & Brain exercise program were interviewed over the phone. The following instruments were used: Barthel Index (BI) to assess care recipients' ability to function independently on activities of daily living (ADL), the Neuropsychiatric Inventory (NPI) to evaluate neuropsychiatric symptoms, and the CarerQol-7D/ CarerQol-VAS to determine caregiver subjective burden/well-being.Results:Pre and post-confinement comparisons showed that care recipients significantly declined their independence in ADL (p = 0.003) and increased NPI total score (MD = 5.72; 95% CI: 1.19 to 10.25, p = 0.015). As for caregivers, results also showed an increased caregiving burden (MD = -0.17; 95% CI: -0.27 to -0.08; p = 0.001) and a decline in their well-being (p = 0.015).Discussion:COVID-19 crisis sheds light on how imperative it is to find solutions and design contingency plans for future crisis, in order to ensure properly sustained support to dementia caregiving dyads and mitigate caregivers' burden.