Modifiable barriers to enrollment in American ALS research studies
Modifiable barriers to enrollment in American ALS research studies
复制标题
DOI：
10.3109/17482968.2010.484494
复制
发表时间：
2010-12-01
影响因子：
--
通讯作者：
Kasarskis, Edward
中科院分区：
文献类型：
--
作者：
Bedlack, Richard S.;Wicks, Paul;Kasarskis, Edward
Enrollment in ALS research studies is surprisingly low. Here we report on two online patient surveys that help identify some of the reasons. These include failure to invite patients to enroll, especially patients who have already participated in prior studies. Also included are patient concerns about the cost of participation, and confusion about several aspects of studies being offered. Along with prior work, these data suggest specific steps that can be taken to improve enrollment.
