Quality of life--ageing and Down syndrome.

Quality of life--ageing and Down syndrome.
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DOI:
10.3104/case-studies.101
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发表时间:
2001-07-01
期刊:
Down's syndrome, research and practice : the journal of the Sarah Duffen Centre
影响因子:
--
通讯作者:
Matthews, B
Matthews, B
中科院分区:
其他
文献类型:
--
作者:
Brown, R;Taylor, J;Matthews, B

文献摘要

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本文基于试点定性研究,调查了高年龄段(45-70 岁)唐氏综合症患者的生活质量。通过使用问卷,记录一小群人当前的生活经历和兴趣,以及他们对过去和现在的一些看法,包括他们对衰老过程的看法。提出的建议特别涉及需要认识到可变性、感知和选择原则,同时提供支持以鼓励有尊严和积极的生活方式。
This article, based on pilot qualitative research, examines the quality of life of people with Down syndrome who are in the upper age bracket (45-70 years). Through use of a questionnaire, the current life experience and interests of a small group of individuals are noted, along with some of their perceptions concerning their past and present, including their views on the ageing process. Recommendations are made particularly in relation to the need to recognise the principles of variability, perception and choice, while providing support to encourage dignified and active lifestyles.