The missed disease? Endometriosis as an example of 'undone science'.
The missed disease? Endometriosis as an example of 'undone science'.
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错过的疾病？子宫内膜异位症作为“撤消科学”的一个例子。
DOI：
10.1016/j.rbms.2021.07.003
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发表时间：
2022-03
影响因子：
--
通讯作者：
Hudson N
中科院分区：
文献类型：
--
作者：
Hudson N
子宫内膜异位症是一种慢性妇科疾病，由于其病因不明，诊断和治疗不一致，被称为“漏诊疾病”。与糖尿病和哮喘等其他长期疾病不同，子宫内膜异位症在全球范围内的政府政策和研究资助中基本上被忽视了。利用不断发展的“无知研究”领域的学术成果，本文考虑了围绕子宫内膜异位症的模糊性是如何成为更广泛的话语、物质和政治因素的一部分，这些因素在沉默、忽视或边缘化其他形式的知识的同时招收了某些形式的知识。它使用“未完成的科学”和“故意无知”的概念来探索关于子宫内膜异位症的知识缺乏是如何导致结构，文化和政治过程以及某些声音和社区特权的力量。这篇论文表明，子宫内膜异位症与历史上特定的月经结构和女性疼痛的联系，已经影响了当代对这种疾病的想象，包括女性对自己的疾病负有某种责任的想法。从无知的角度来看，子宫内膜异位症的隐形遗产如何塑造了它在当前政治和社会舞台上的地位，并反映了一个未完成的科学过程。这篇论文的结论是，子宫内膜异位症作为一种影响全球数百万妇女的慢性、限制生命的疾病，其社会和政治意义仍然需要关注、启发和批评。
Endometriosis is a chronic gynaecological condition which has been referred to as the ‘missed disease’ due to its unclear aetiology and inconsistencies in its diagnosis and management. Unlike other long-term conditions such as diabetes and asthma, endometriosis has remained largely ignored in government policy and research funding globally. Drawing on scholarship from the growing field of ‘ignorance studies’, this paper considers how ambiguity around endometriosis is part of a wider constellation of discursive, material and political factors which enrol certain forms of knowledge whilst silencing, ignoring or marginalizing other forms of knowledge. It uses concepts of ‘undone science’ and ‘wilful ignorance’ to explore how an absence of knowledge on endometriosis is a result of structural, cultural and political processes and forces which privilege certain voices and communities. This paper suggests that the association of endometriosis with historically specific constructions of menstruation and women’s pain has informed contemporary imaginaries around the condition, including ideas about women being somehow accountable for their own illnesses. Applying an ignorance lens demonstrates how the legacy of invisibility of endometriosis shapes its place in the present political and social arena, and is reflective of a process of undone science. The paper concludes by arguing that the social and political significance of endometriosis as a chronic, life-limiting condition which affects millions of women globally continues to need attention, illumination and critique.