Hospital-Based Support Groups for Parents of Seriously Unwell Children: An Example from Pediatric Oncology in Australia
Hospital-Based Support Groups for Parents of Seriously Unwell Children: An Example from Pediatric Oncology in Australia
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针对严重不适儿童家长的医院支持小组：以澳大利亚儿科肿瘤学为例
DOI：
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发表时间：
2005
期刊：
影响因子：
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通讯作者：
B. Goodenough
中科院分区：
文献类型：
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作者：
T. Foreman;Lia Willis;B. Goodenough
摘要虽然支持团体的好处和局限性已经得到了很好的描述，但很少有关于儿科环境中成人开放式医院项目的报道。本文讨论了这些群体面临的挑战，强调了心理教育同伴支持计划的经验，为诊断为严重的肿瘤和血液学疾病的儿童的父母。通过书面评估和小组反思，从参与者、促进者和护士那里收集了计划反馈。尽管家长出席率低于预期，但调查结果表明，不限成员名额的医院团体对处理儿童癌症诊断和治疗的家庭具有特殊意义，为支持、信息提供和知识共享提供了一个安全的论坛。
ABSTRACT While benefits and limitations of support groups have been well described, there are few reports of open-ended hospital-based programs for adults in paediatric settings. This paper discusses challenges for such groups, highlighting experiences from a psycho-education peer-support program for parents of children diagnosed with serious oncology and haematology conditions. Program feedback was collected from participants, facilitators, and nurses via written evaluations and post-group reflections. Despite lower than anticipated parental attendance, findings indicated that open-ended hospital-based groups have specific relevance for families dealing with diagnosis and treatment of childhood cancer, providing a safe forum for support, information provision and knowledge-sharing.