The development and validation of a novel questionnaire to measure patient and family satisfaction with end-of-life care: the Canadian Health Care Evaluation Project (CANHELP) Questionnaire
The development and validation of a novel questionnaire to measure patient and family satisfaction with end-of-life care: the Canadian Health Care Evaluation Project (CANHELP) Questionnaire
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DOI：
10.1177/0269216310373168
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发表时间：
2010-10-01
影响因子：
4.4
通讯作者：
Cohen, S. Robin
中科院分区：
文献类型：
--
作者：
Heyland, Daren K.;Cook, Deborah J.;Cohen, S. Robin
本研究的目的是进一步验证一种新的工具来衡量满意度与临终关怀，称为加拿大卫生保健评估项目（CANHELP）问卷。通过对患有晚期生命限制性疾病的患者及其家庭护理人员进行横断面调查，并完成CANHELP，全球满意度评级和生活质量问卷，收集数据。我们进行了因素分析，使用Cronbach's alpha评估内部一致性，并通过描述CANHELP，全球满意度和生活质量问卷得分之间的相关性来评估结构效度。共有361名患者和193名家庭问卷可供分析。在因素分析中，我们确定了六个容易解释的因素，分别解释了55.4%和60.2%的变异的病人和照顾者问卷。对于患者版本，从这些因素衍生的分量表是与医生的关系，疾病管理，沟通，决策，家庭的角色和你的幸福。对于家庭问卷，因素是与医生的关系，医生和护士的特点，疾病管理，沟通和决策，你的参与和你的幸福感。每个问卷的每个分量表都具有可接受的极好的内部一致性（Cronbach α范围为0.69-0.94）。我们观察到CANHELP总体满意度评分与总体满意度评分之间的良好相关性（患者和家属的相关系数分别为0.49和0.63），高于CANHELP与生活质量工具之间的相关性。我们的结论是，CANHELP问卷是一个有效的和内部一致的工具来衡量与临终关怀的满意度。
The purpose of this study was to further validate a novel instrument to measure satisfaction with end-of-life care, called the Canadian Health Care Evaluation Project (CANHELP) questionnaire. Data were collected by a cross-sectional survey of patients who had advanced, life-limiting illnesses and their family caregivers, and who completed CANHELP, a global rating of satisfaction, and a quality of life questionnaire. We conducted factor analysis, assessed internal consistency using Cronbach's alpha, and evaluated construct validity by describing the correlation amongst CANHELP, global rating of satisfaction and the quality of life questionnaire scores. There were 361 patient and 193 family questionnaires available for analysis. In the factor analysis, we identified six easily interpretable factors which explained 55.4% and 60.2% of the variance for the patient and caregiver questionnaire, respectively. For the patient version, the subscales derived from these factors were Relationship with Doctors, Illness Management, Communication, Decision-Making, Role of the Family, and Your Well-being. For the family questionnaire, the factors were Relationship with Doctors, Characteristics of Doctors and Nurses, Illness Management, Communication and Decision-Making, Your Involvement, and Your Wellbeing. Each subscale for each questionnaire had acceptable to excellent internal consistency (Cronbach's alpha ranged from 0.69-0.94). We observed good correlations between the CANHELP overall satisfaction score and global rating of satisfaction (correlation coefficient 0.49 and 0.63 for patient and family, respectively) which was greater than the correlations between CANHELP and the quality of life instruments. We conclude that the CANHELP Questionnaire is a valid and internally consistent instrument to measure satisfaction with end-of-life care.