Unmet needs and relationship challenges of head and neck cancer patients and their spouses
Unmet needs and relationship challenges of head and neck cancer patients and their spouses
复制标题
DOI：
10.1080/07347332.2016.1195901
复制
发表时间：
2016-01-01
影响因子：
2.1
通讯作者：
Gupta, Vishal
中科院分区：
文献类型：
--
作者：
Badr, Hoda;Herbert, Krista;Gupta, Vishal
在头颈癌（HNC）中，基于夫妇的干预可能有助于促进治疗完成，患者康复，并改善双方的生活质量。为了确定未来干预的目标，我们进行了一项定性研究，以了解HNC治疗性放疗期间患者和配偶未满足的需求和关系挑战。在完成治疗的6个月内，对6名HNC患者（83%为男性）和6名配偶（83%为女性）进行了半结构化访谈。访谈录音和转录使用扎根理论分析。患者和配偶确定了几个未满足的需求，包括更好地准备身体副作用的严重程度，更清晰的恢复时间轴，以及处理自己和对方情绪反应的策略。照顾者未满足的需求包括平衡相互竞争的角色/责任，为自我照顾腾出时间，并找到鼓励病人自我照顾的有效策略。83%的配偶和所有患者报告在治疗期间冲突增加。其他关系挑战包括亲密关系和社交/休闲活动的变化。研究结果表明，夫妇为基础的干预措施，强调管理的重要性，通过自我护理常规的常规做法的身体和心理症状可能是有益的患者和配偶。同样，教授配偶有效激励和鼓励患者自我护理的方法的计划可能有助于最大限度地减少冲突，并帮助夫妇作为一个团队一起导航HNC治疗和康复。
In head and neck cancer (HNC), couple-based interventions may be useful for facilitating treatment completion, patient rehabilitation, and improving both partners' quality of life. With the goal of identifying targets for future interventions, we conducted a qualitative study to understand patient and spouse unmet needs and relationship challenges during curative radiotherapy for HNC. Semistructured interviews were conducted with six HNC patients (83% male) and six spouses (83% female) within 6 months of completing treatment. Interviews were audiotaped and transcribed using grounded theory analysis. Patients and spouses identified several unmet needs including better preparation regarding the severity of physical side effects, a clearer timeline for recovery, and strategies for dealing with their own and each other's emotional reactions. Caregiver's unmet needs included balancing competing roles/responsibilities, making time for self-care, and finding effective strategies for encouraging patient's self-care. Eighty-three percent of spouses and all patients reported increased conflict during treatment. Other relationship challenges included changes in intimacy and social/leisure activities. Findings suggest that couple-based interventions that emphasize the importance of managing physical and psychological symptoms through the regular practice of self-care routines may be beneficial for both patients and spouses. Likewise, programs that teach spouses ways to effectively motivate and encourage patients' self-care may help minimize conflict and help couples navigate HNC treatment and recovery together as a team.