Community-based participatory research in a heavily researched inner city neighbourhood: Perspectives of people who use drugs on their experiences as peer researchers.
Community-based participatory research in a heavily researched inner city neighbourhood: Perspectives of people who use drugs on their experiences as peer researchers.
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DOI：
10.1016/j.socscimed.2017.01.027
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发表时间：
2017-03
期刊：
影响因子：
--
通讯作者：
McNeil R
中科院分区：
文献类型：
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作者：
Damon W;Callon C;Wiebe L;Small W;Kerr T;McNeil R
基于社区的参与性研究（CBPR）已成为一种越来越普遍的研究方法，涉及使用（d）药物的人（PWUD），他们经常被聘为这些项目的同行研究员。本文旨在了解CBPR对PWUD的影响，特别是那些生活在CBPR项目经常所在的经过大量研究和污名化的社区的人。本研究借鉴了14个与PWUD谁有以前的经验，同行研究人员和CBPR项目的研究参与者在2010年7月和2011年2月之间进行的深入访谈。该研究在研究设计、招募、访谈和分析中采用了CBPR方法。我们的分析表明，参与者在原则上支持CBPR，并描述了它有助于对抗污名化假设和研究人员偏见的方式。与会者还报告说，他们从参与CBPR项目中获得了积极的个人收益。然而，许多参与者对CBPR项目有负面的经验，特别是当CBPR原则以肤浅或不完整的方式实施时。与会者强调，包容性和积极解构研究人员与社区成员之间的等级制度对于在吸毒人群中成功开展基于社区的预防犯罪工作至关重要。CBPR已被边缘化社区广泛采用作为一种研究方法，但往往执行不一致。尽管如此，CBPR可以使社区有能力对抗经常通过对边缘化社区的学术研究而复制的社会耻辱形式。我们的研究结果描述了CBPR的好处是如何最大化时，CBPR原则是一贯适用的，当社区为基础的研究人员支持的方式，减少权力等级。这表明需要在受影响社区内进行能力建设，为同行研究人员制定独立的支持、培训和申诉程序。
Community based participatory research (CBPR) has become an increasingly common approach to research involving people who use(d) drugs (PWUD), who are often employed as Peer Researchers on these projects. This paper seeks to understand the impact of CBPR on PWUD, particularly those living in heavily researched and stigmatized neighbourhoods where CBPR projects are often located. This study draws on 14 in-depth interviews with PWUD who had previous experience as both peer researchers and research participants in CBPR projects conducted between July 2010 and February 2011. The study employed a CBPR approach in its study design, recruitment, interviewing, and analysis. Our analysis indicates that participants were supportive of CBPR in principle and described the ways in which it helped contest stigmatizing assumptions and researcher bias. Participants also reported positive personal gains from participation in CBPR projects. However, many participants had negative experiences with CBPR projects, especially when CBPR principles were implemented in a superficial or incomplete manner. Participants emphasized the importance of inclusiveness and active deconstruction of hierarchy between researchers and community members to successful CBPR among drug using populations. CBPR has been widely adopted as a research approach within marginalized communities but has often been implemented inconsistently. Still, CBPR can empower communities to contest forms of social stigma that are often reproduced through academic research on marginalized communities. Our findings describe how the benefits of CBPR are maximized when CBPR principles are consistently applied and when community based researchers are supported in ways that reduce hierarchies of power. This suggests a need for capacity building within affected communities to develop independent support, training, and grievance processes for peer researchers.