Parenting stress in caregivers of young children with ASD concerns prior to a formal diagnosis
Parenting stress in caregivers of young children with ASD concerns prior to a formal diagnosis
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在正式诊断之前，患有自闭症谱系障碍 (ASD) 幼儿的照顾者面临的养育压力
DOI：
10.1002/aur.2213
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发表时间：
2020-01-01
期刊：
影响因子：
4.7
通讯作者：
Stone, Wendy L.
中科院分区：
文献类型：
--
作者：
DesChamps, Trent D.;Ibanez, Lisa, V;Stone, Wendy L.
强有力的研究结果表明，患有自闭症谱系障碍(ASD)儿童的父母经历了高水平的育儿压力，这与家庭的负面结果有关。尽管大多数关于育儿压力的研究都集中在患有自闭症的儿童的父母身上，但在确诊之前，患有自闭症相关行为的幼儿的父母也面临着许多独特的挑战。然而，到目前为止，还没有研究在正式诊断为ASD之前，检查患有ASD的儿童的父母的育儿压力模式。因此，目前的研究调查了患有自闭症儿童的父母与有非自闭症儿童发展障碍(例如，语言延迟)的父母和没有发展障碍儿童的父母之间的父母压力的纵向轨迹。研究人员还对育儿压力的已知预测因素进行了检验。多水平模型分析的结果显示，在儿童早期发展过程中，患有自闭症儿童的父母经历了比非自闭症儿童的父母和没有自闭症儿童的父母更高水平的育儿压力。此外，育儿效能、心理功能、社会满意度和儿童社交行为对所有父母的育儿压力水平都有预测作用。自闭症研究报告2019年。(C)2019年国际自闭症研究协会，Wiley Percials，Inc.Lay摘要这项研究在收到诊断之前，对患有自闭症的幼儿的父母进行了一段时间的育儿压力调查。患有自闭症儿童的父母报告说，与有其他发展障碍儿童的父母和没有自闭症儿童的父母相比，父母的育儿压力水平一直更高。此外，除了其他父母和孩子预测父母压力的因素外，对ASD的担忧还可以预测父母压力。这些发现强调了在ASD诊断之前更好地支持家庭的必要性。
Robust findings demonstrate that parents of children with autism spectrum disorder (ASD) experience high levels of parenting stress that are associated with negative outcomes for families. Although the majority of research on parenting stress has focused on parents of children with an existing diagnosis, parents of young children with concerns about ASD-related behaviors also face many unique challenges before the time of diagnosis. However, no study to date has examined patterns of parenting stress among parents of children with ASD concerns prior to a formal ASD diagnosis. Therefore, the current study investigated longitudinal trajectories of parenting stress among parents of young children with ASD concerns compared to parents of children with non-ASD developmental concerns (e.g., language delay), and parents of children with no developmental concerns. Known predictors of parenting stress were also examined. Results from multilevel model analyses revealed that parents of children with ASD concerns experienced consistently higher levels of parenting stress across early child development compared to parents of children with non-ASD developmental concerns and those with no concerns. Additionally, parenting efficacy, psychological functioning, social satisfaction, and child social communication behaviors predicted levels of parenting stress for all parents. Autism Res 2019. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. Lay Summary This study examined parenting stress across time among parents of young children with ASD concerns before receiving a diagnosis. Parents of children with ASD concerns reported consistently higher levels of parenting stress compared to parents of children with other developmental concerns and parents of children with no concerns. Also, ASD concerns predicted parenting stress in addition to other parent and child predictors of parenting stress. These findings highlight the need to better support families before an ASD diagnosis.