A Call to Action to Address Disparities in Palliative Care Access: A Conceptual Framework for Individualizing Care Needs
A Call to Action to Address Disparities in Palliative Care Access: A Conceptual Framework for Individualizing Care Needs
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DOI：
10.1089/jpm.2020.0435
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发表时间：
2020-10-07
影响因子：
2.8
通讯作者：
Davidson, Patricia M.
中科院分区：
文献类型：
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作者：
Nelson, Katie E.;Wright, Rebecca;Davidson, Patricia M.
姑息治疗是一种价值观驱动的方法，为患有严重生命限制疾病的个人及其家人提供全面护理。尽管它的好处得到了证实，但整个社会的获取和接受程度并不统一。姑息治疗的起源是通过传统的西方视角发展起来的，这种视角决定了互动和交流的模式。随着姑息治疗的重要性日益得到承认，获得服务的障碍以及对相关性和适当性的看法也得到了更多的考虑。新冠肺炎的流行，以及最近美国和世界各地的社会正义运动，促使姑息治疗社区及时退一步，考虑扩大和增长的机会。本文回顾了传统的姑息治疗提供模式，并概述了一个改进的概念框架，以支持研究人员、临床医生和工作人员评估优先事项，以确保从公平的立场满足个性化的患者需求，以创造一条可行的前进道路。
Palliative care is a values-driven approach for providing holistic care for individuals and their families enduring serious life-limiting illness. Despite its proven benefits, access and acceptance is not uniform across society. The genesis of palliative care was developed through a traditional Western lens, which dictated models of interaction and communication. As the importance of palliative care is increasingly recognized, barriers to accessing services and perceptions of relevance and appropriateness are being given greater consideration. The COVID-19 pandemic and recent social justice movements in the United States, and around the world, have led to an important moment in time for the palliative care community to step back and consider opportunities for expansion and growth. This article reviews traditional models of palliative care delivery and outlines a modified conceptual framework to support researchers, clinicians, and staff in evaluating priorities for ensuring individualized patient needs are addressed from a position of equity, to create an actionable path forward.