Factors associated with the reporting of Down syndrome as the underlying cause of death on US death certificates.
Factors associated with the reporting of Down syndrome as the underlying cause of death on US death certificates.
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DOI：
10.1111/jir.12926
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发表时间：
2022-05
影响因子：
3.6
通讯作者：
Finan, J. M.
中科院分区：
文献类型：
--
作者：
Landes, S. D.;Turk, M. A.;Finan, J. M.
关键词：
将残疾报告为死亡的根本原因的做法阻碍了旨在防止唐氏综合症患者过早死亡的努力。先前的研究表明，这种形式的诊断遮蔽可能是围绕死亡的不确定性增加的结果。本研究使用双变量分析和多变量Logistic回归模型研究了社会人口学特征、合并症、死亡背景和处理特征与2005-2017年美国多死因数据文件中唐氏综合症作为潜在死因的报告之间的关系。唐氏综合征被报告为死亡的根本原因与表明围绕死亡的不确定性增加的特征有关。结果还表明，其他机制可能会导致报告不准确，如种族偏见，以及继续将残疾与健康混为一谈。出具死亡证明的医务人员在报告死因时应力求准确。为了确保这一结果，即使在不确定性增加的情况下，唐氏综合症也不应被报告为潜在的死亡原因，除非死者被诊断为阿尔茨海默病或未指明的痴呆症。未来的研究应该进一步探索唐氏综合症或其他发育障碍成年人死亡证明错误增加与种族偏见有关的可能性。
Efforts aimed at preventing premature mortality for people with Down syndrome are hindered by the practice of reporting disability as the underlying cause of death. Prior research suggests this form of diagnostic overshadowing may be the result of increased uncertainty surrounding the death. This study uses bivariable analysis and multivariable logistic regression models to investigate associations between sociodemographic characteristics, comorbidities, and death context and processing characteristics with the reporting of Down syndrome as the underlying cause of death in 2005–2017 US Multiple Cause of Death data files. The reporting of Down syndrome as the underlying cause of death was associated with characteristics indicative of an increased amount of uncertainty surrounding the death. Results also suggest other mechanisms may inform inaccurate reporting, such as racial bias, and the continued conflation of disability and health. Medical personnel certifying death certificates should strive for accuracy when reporting the causes of death. To ensure this outcome, even in the midst of increased uncertainty, Down syndrome should not be reported as the underlying cause of death unless the decedent was diagnosed with Alzheimer’s disease or unspecified dementia. Future research should further explore the possibility that increased death certification errors for adults with Down syndrome, or other developmental disabilities, is associated with racial bias.
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影响因子：
2.9
作者：
Landes SD;Turk MA;Bisesti E
通讯作者：
Bisesti E
DOI：
10.1111/j.1365-2788.2012.01614.x
发表时间：
2013-12-01
影响因子：
3.6
作者：
Landes, S. D.;Peek, C. W.
通讯作者：
Peek, C. W.
影响因子：
4.5
作者：
Landes, Scott D.;Turk, Margaret A.;Stevens, J. Dalton
通讯作者：
Stevens, J. Dalton
影响因子：
12.7
作者：
Krahn, Gloria L.;Walker, Deborah Klein;Correa-De-Araujo, Rosaly
通讯作者：
Correa-De-Araujo, Rosaly
影响因子：
39.2
作者：
Lloyd-Jones, DM;Martin, DO;Levy, D
通讯作者：
Levy, D