A pre-visit tailored website enhances counselees' realistic expectations and knowledge and fulfils information needs for breast cancer genetic counselling
A pre-visit tailored website enhances counselees' realistic expectations and knowledge and fulfils information needs for breast cancer genetic counselling
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DOI：
10.1007/s10689-011-9479-1
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发表时间：
2012-03-01
期刊：
影响因子：
2.2
通讯作者：
Ausems, Margreet G. E. M.
中科院分区：
文献类型：
--
作者：
Albada, Akke;van Dulmen, Sandra;Ausems, Margreet G. E. M.
家庭中第一个要求乳腺癌遗传咨询的咨询师通常不知道该期待什么，或者对遗传咨询有不切实际的期望。获得专门的信息可能有助于他们为第一次访问做准备。我们进行了一项研究的影响，访问前的网站提供计算机定制的信息（E-info基因（CA）），对咨询者的期望，有关乳腺癌和遗传和信息需求的知识。咨询者被随机分配接受常规护理（UC）或UC加网站。所有的咨询者都完成了一份基线问卷，那些随机分配到干预组的人在浏览网站后也完成了一份问卷。在访问E-info基因（ca）后，咨询者（n = 101）更好地知道他们第一次访问的期望（chi（2）= 4.43; P = 0.04），并且与UC组（n = 89）相比，对DNA检测的可能性表现出不切实际的期望（chi（2）= 4.84; P = 0.03）。此外，与UC组相比，该网站增加了咨询者对乳腺癌和遗传的知识（B =.23; P =.003），降低了他们的信息需求（B =-.16; P =.000）。特别是，关于遗传咨询的程序方面和情感后果的信息被认为不太重要。这项研究表明，咨询人知道更多，需要更少时，他们提供了扩展访问前的信息，通过一个量身定制的网站和咨询人进入访问更现实的期望遗传咨询。这可能有助于在随后的磋商中进行沟通，并使之有重点。
Counselees who are the first in their family to request breast cancer genetic counselling often don't know what to expect or have unrealistic expectations of genetic counselling. Receiving tailored information might help them to prepare for their first visit. We conducted a study of the effects of a pre-visit website providing computer-tailored information (E-info gene(ca)), on counselees' expectations, knowledge about breast cancer and heredity and information needs. Counselees were randomized to receive usual care (UC) or UC plus website. All counselees completed a baseline questionnaire and those randomized to the intervention group also completed a questionnaire after having viewed the website. After having accessed E-info gene(ca) counselees (n = 101) better knew what to expect of their first visit (chi(2) = 4.43; P = .04) and less often showed unrealistic expectations about possibilities for DNA-testing (chi(2) = 4.84; P = .03) than counselees in the UC group (n = 89). In addition, the website increased counselees' knowledge of breast cancer and heredity (B = .23; P = .003) and lowered their information needs (B = -.16; P = .000) compared to the UC group. Especially, information concerning procedural aspects and emotional consequences of genetic counselling was considered less important. This study showed that counselees know more and need less when they are provided with extended pre-visit information through a tailored website and counselees enter the visit with more realistic expectations of genetic counselling. This might facilitate and focus communication within the subsequent consultation.