Telecare: perspectives on the changing role of patients and citizens

Telecare: perspectives on the changing role of patients and citizens
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DOI:
10.1258/1357633054461679
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发表时间:
2005-01-01
影响因子:
4.7
通讯作者:
Mair, F
Mair, F
中科院分区:
医学3区
文献类型:
--
作者:
Finch, T;Mort, M;Mair, F

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我们在英国进行了一项定性研究,以探讨远程医疗,远程护理和电子健康对患者和公民不断变化的角色的看法。我们相信这些应用之间存在重要差异,但为了简单起见,术语“远程护理”在这里广泛使用,包括所有三个。2002年9月至2004年5月进行了深入的半结构化访谈。参与者是来自英国的38名关键信息提供者,已知参与或对远程护理感兴趣:政策制定者,临床医生,技术人员,卫生服务管理人员,研究人员和患者倡导者。访谈是当面或通过电话进行的,并在参与者同意的情况下进行录音。最常提到的病人优先事项包括获得服务的机会、护理地点和护理质量,一些答复者强调病人选择的重要性(在预约和获得服务的方式方面)。然而,远程护理对患者的影响超出了获取问题。一个主要的问题是,“优先事项”的假设,而不是基于经验的理解,此外,对于个别病人,对特定形式的服务提供的偏好很可能代表多个优先事项之间的权衡。本研究的结果证实,随着越来越多地使用新技术提供医疗保健,病人的权利和责任的概念正在发生变化。
We conducted a qualitative study in the UK to examine perspectives about telemedicine, telecare and e-health for the changing roles of patients and citizens. We believe there are important differences between these applications, but for simplicity, the term 'telecare' is used broadly here to include all three. In-depth, semistructured interviews were conducted between September 2002 and May 2004. Participants were 38 key informants from the UK, known to have involvement or interest in telecare: policy-makers, clinicians, technologists, health service managers, researchers and patient advocates. Interviews were conducted either in person or over the telephone, and were audio-recorded with participants' consent. The most frequently cited priorities for patients included accessibility to services, locations of care and quality of care, with some respondents emphasizing the importance of choice for the patient (in terms of appointments and ways of accessing services). However, telecare has implications for patients that go beyond issues of access. A major problem is that 'priorities' are assumed rather than based on an empirical understanding; moreover, for individual patients, preferences for particular forms of service delivery are likely to represent trade-offs between multiple priorities. The findings of the present study confirm that concepts of the patient's rights and responsibilities are changing with the increasing use of new technologies to deliver health care.