"A Switch Went off in my Whole Body": Lived Experiences of Fatigue and Post-Exertional Malaise in Long Covid
"A Switch Went off in my Whole Body": Lived Experiences of Fatigue and Post-Exertional Malaise in Long Covid
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“我全身的开关都关掉了”：长期新冠期间疲劳和劳累后不适的亲身经历
DOI：
10.1145/3544549.3585846
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发表时间：
2023
期刊：
影响因子：
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通讯作者：
Sas C
中科院分区：
文献类型：
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作者：
Sas C
不断增长的HCI健康议程专注于不同的慢性病，但对长期新冠肺炎的关注较少，尽管它对生活质量产生了严重影响。我们报告了来自两个研讨会的结果，其中有13名长期新冠肺炎患者，指出了理解他们的身体，认知和情绪症状以及监测运动后不适触发因素的挑战。虽然大多数参与者参与起搏活动以自我管理疲劳，但只有少数人意识到规划所有日常活动和例程的重要性，以避免劳累后不适。我们的结论与设计的影响，以支持轻量级的跟踪和感觉疲劳症状，新的数据分析，监测的触发器的运动后不适和症状的恶化，并支持自我管理，以防止运动后不适。
The growing HCI agenda on health has focused on different chronic conditions but less so on Long Covid, despite its severe impact on the quality of life. We report findings from 2 workshops with 13 people living with Long Covid, indicating the challenges of making sense of their physical, cognitive, and emotional symptoms, and of monitoring the triggers of post-exertional malaise. While most participants engage in pacing activities for the self-management of fatigue, only a few are aware of the importance of planning all their daily activities and routines in order to avoid post-exertional malaise. We conclude with design implications to support lightweight tracking and sensemaking of fatigue symptoms, novel data analytics for monitoring the triggers of post-exertional malaise and the worsening of symptoms, and support for self-management in order to prevent post-exertional malaise.