Measuring the quality of life of people at the end of life: The McGill Quality of Life Questionnaire-Revised
Measuring the quality of life of people at the end of life: The McGill Quality of Life Questionnaire-Revised
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DOI：
10.1177/0269216316659603
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发表时间：
2017-02-01
影响因子：
4.4
通讯作者：
Gadermann, Anne M.
中科院分区：
文献类型：
--
作者：
Cohen, S. Robin;Sawatzky, Richard;Gadermann, Anne M.
背景：麦吉尔生活质量调查问卷自1996年出版以来，未经修改，已广泛应用于危及生命的疾病患者。随着使用，可以改进的地方出现了；因此，随着时间的推移，测试了各种微小的修改。目的：对麦吉尔生活质量调查问卷（McGill Quality of Life Questionnaire- revised）进行修订，在保持或改进其心理测量特性和长度的同时，使其尽可能接近麦吉尔生活质量调查问卷，以便与现有的麦吉尔生活质量调查问卷文献进行合理比较。设计：使用了来自八项研究的数据集（四项研究最初用于开发麦吉尔生活质量问卷，两项研究用于开发新的麦吉尔生活质量问卷，两项研究用于不相关的目的）。麦吉尔生活质量问卷-修订版是通过测量不变性分析、验证性因子分析和与麦吉尔生活质量问卷整体生活质量项目的相关性计算而开发的。背景/参与者：数据来自1702名来自急性和姑息治疗单位、姑息家庭护理服务、肿瘤学和艾滋病毒/艾滋病门诊的危及生命的疾病患者。结果：修订后的麦吉尔生活质量问卷包括14个项目（加上全球生活质量项目）。我们编制了一个新的身体量表，将身体症状和身体健康结合起来，并增加了一个关于身体功能的新项目。存在子量表缩减为4个项目。修订后的支持子量表更名为“社交”，更关注人际关系。心理分量表保持不变。验证性因子分析结果为《麦吉尔生活质量问卷-修订》的测量结构提供支持。整体量表具有良好的内部一致性信度（=0.94）。结论：麦吉尔生活质量问卷修订版在麦吉尔生活质量问卷的基础上进行了改进，可以取代麦吉尔生活质量问卷，因为它包含了改进的措辞，在一定程度上扩展了较少项目的概念库，并且在保留良好的心理测量特性的同时，为物理领域提供了单一的子量表。
Background: The McGill Quality of Life Questionnaire has been widely used with people with life-threatening illnesses without modification since its publication in 1996. With use, areas for improvement have emerged; therefore, various minor modifications were tested over time.Aim: To revise the McGill Quality of Life Questionnaire (McGill Quality of Life Questionnaire-Revised) while maintaining or improving its psychometric properties and length, keeping it as close as possible to the McGill Quality of Life Questionnaire to enable reasonable comparison with existing McGill Quality of Life Questionnaire literature.Design: Data sets from eight studies were used (four studies originally used to develop the McGill Quality of Life Questionnaire, two to develop new McGill Quality of Life Questionnaire versions, and two with unrelated purposes). The McGill Quality of Life Questionnaire-Revised was developed using analyses of measurement invariance, confirmatory factor analysis, and calculation of correlations with the McGill Quality of Life Questionnaire's global quality of life item.Setting/Participants: Data were from 1702 people with life-threatening illnesses recruited from acute and palliative care units, palliative home care services, and oncology and HIV/AIDS outpatient clinics.Results: The McGill Quality of Life Questionnaire-Revised consists of 14 items (plus the global quality of life item). A new Physical subscale was created combining physical symptoms and physical well-being and a new item on physical functioning. The Existential subscale was reduced to four items. The revised Support subscale, renamed Social, focuses more on relationships. The Psychological subscale remains unchanged. Confirmatory factor analysis results provide support for the measurement structure of the McGill Quality of Life Questionnaire-Revised. The overall scale has good internal consistency reliability (=0.94).Conclusion: The McGill Quality of Life Questionnaire-Revised improves on and can replace the McGill Quality of Life Questionnaire since it contains improved wording, a somewhat expanded repertoire of concepts with fewer items, and a single subscale for the physical domain, while retaining good psychometric properties.