Unmet needs of family cancer caregivers predict quality of life in long-term cancer survivorship
Unmet needs of family cancer caregivers predict quality of life in long-term cancer survivorship
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DOI：
10.1007/s11764-019-00794-6
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发表时间：
2019-10-01
影响因子：
3.7
通讯作者：
Carver, Charles S.
中科院分区：
文献类型：
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作者：
Kim, Youngmee;Carver, Charles S.
目的确定与护理人员未满足需求相关的人口学和护理特征，并检查护理人员未满足需求与患者初诊后2年和5年生活质量的关系。方法癌症家庭护理人员在诊断后2年（T1）和5年（T2）完成前瞻性纵向调查。在T1时测量人口统计学和护理特征。在T1和T2测量未满足的需求和生活质量。结果年轻和配偶照顾者报告了更多的未满足需求（B > 2.03, p < 0.05）。与人口统计学特征无关，在长期生存阶段，护理人员认为为癌症患者提供护理是压倒性的，这与他们在各个领域的需求未得到满足一致相关，同时和前瞻性（B > 2.50, p < 0.05）。研究结果强调了早期主观照顾压力对家庭照顾者当前和多年后需求未得到满足的贡献，这反过来又与不同家庭照顾轨迹的生活质量较差有关。研究结果表明，在心理肿瘤学研究和临床实践中，应根据人口统计学特征确定家庭照顾者的高危亚组，并评估照顾压力。
Purpose To identify demographic and caregiving characteristics associated with caregivers' unmet needs and to examine associations of caregivers' unmet needs with their quality of life at 2 years and 5 years since their patients' initial diagnosis. Methods Family cancer caregivers completed prospective longitudinal surveys at 2 years (T1) and 5 years (T2) post diagnosis. Demographic and caregiving characteristics were measured at T1. Unmet needs and quality of life were measured at T1 and T2. Results Younger and spousal caregivers reported greater unmet needs (B > 2.03, p < .05). Independent of demographic characteristics, caregivers' perception that providing care to their relative with cancer was overwhelming was consistently associated with unfulfillment of their needs in various domains, concurrently and prospectively (B > 2.50, p < .05), across the long-term survivorship phases. Conclusions Findings highlight the contribution of earlier subjective caregiving stress to family caregivers' needs not being met both currently and years later, which, in turn, related to poorer quality of life across different family caregivership trajectories. Findings suggest identifying at-risk subgroups of family caregivers based on demographics and assessing caregiving stress as a priority in psycho-oncology research and clinical practices.