I kua na'u "Let me carry out your last wishes" Clinical trial protocol to promote advance care planning among native Hawaiian populations.
I kua na'u "Let me carry out your last wishes" Clinical trial protocol to promote advance care planning among native Hawaiian populations.
复制标题
I kua nau “让我实现您最后的愿望”临床试验方案，以促进夏威夷原住民的预先护理计划。
DOI：
10.1016/j.cct.2023.107365
复制
发表时间：
2023
影响因子：
2.2
通讯作者：
Cabral,HowardJ
中科院分区：
文献类型：
--
作者：
Quintiliani,LisaM;Kamaka,Martina;Henault,Lori;Antonio,MapuanaCK;Sentell,Tetine;Spencer,Kimberley;Akaka,Gerard;Honda,LianaKLaea;Hanakeawe,Damien;Dillard,Adrienne;Kekauoha,BPuni;Davis,ArethaDelight;Seitz,Rae;Cabral,HowardJ
预先护理计划（ACP）是一个关于严重疾病决策的沟通过程，旨在告知患者可能的医疗选择。夏威夷土著人的ACP发病率一直很低，姑息治疗和临终关怀服务的使用率也很低。我们的多学科社区和研究小组合作开展了一项名为“让我实现你最后的愿望”的ACP干预活动，该活动以文化定制视频为特色，目前正在测试其功效。焦点小组和线人访谈进行了与夏威夷土著社区成员，以确保课程尊重夏威夷土著人的历史，意见和文化。夏威夷土著文化传统上是一种口头文化;口头语言传播了莫托洛洛洛、故事、传统、历史和家谱，与视频媒体无缝融合。I kua na'u干预包括多个教育课程，并通过视频（信息和个人）进行增强。具体目的是比较ACP知识（主要结局）和ACP参与准备情况、ACP偏好、决策冲突和ACP完成率（通过电子病历审查）（次要结局）在220名55岁以上的夏威夷原住民中：（a）一项随机对照试验，从门诊诊所招募了110人，和（B）一个前后研究设计，在110人中生活在夏威夷宅基地社区，这些社区位于为夏威夷原住民或辅助生活留出的土地上。我们的方案旨在评估我们的视频-为夏威夷原住民提供基于教育的干预，以支持该社区的决策，并减少严重疾病护理的差异。临床试验注册号：NCT 04771208
Advance Care Planning (ACP) is a communication process about serious illness decision making designed to inform patients of possible medical options. Native Hawaiians consistently have low rates of ACP and low use of palliative and hospice care services. Our multidisciplinary community and research group partnered to createI kua na'u“Let Me Carry Out Your Last Wishes,” an ACP intervention featuring culturally tailored videos and are now testing its efficacy. Focus groups and informant interviews were conducted with Native Hawaiian community members to ensure the curriculum honored the history, opinions, and culture of Native Hawaiians. Native Hawaiian culture has traditionally been an oral culture; the spoken word transmitted the moʻolelo, stories, traditions, histories and genealogies, which merges seamlessly with video media. TheI kua na'uintervention included multiple educational sessions enhanced with videos (informational and personal). The specific aims are to compare ACP knowledge (primary outcome) and readiness for ACP engagement, ACP preferences, decisional conflict, and ACP completion rates via electronic medical record review (secondary outcomes) in 220 Native Hawaiians over age 55 in: (a) a randomized controlled trial of 110 people recruited from ambulatory clinics, and (b) a pre-post study design among 110 people living on Hawaiian Homestead communities located on lands set aside for Native Hawaiians or assisted living.Our protocol aims to evaluate the efficacy of our video-based educational intervention for Native Hawaiians to support decision making in this community and decrease disparities in serious illness care.Clinical Trial Registration Number: NCT04771208