Finding people who will tell you their thoughts on genomics-recruitment strategies for social sciences research

Finding people who will tell you their thoughts on genomics-recruitment strategies for social sciences research
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DOI:
10.1007/s12687-014-0184-2
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发表时间:
2014-10-01
影响因子:
1.9
通讯作者:
Parker, M.
Parker, M.
中科院分区:
其他
文献类型:
--
作者:
Middleton, A.;Bragin, E.;Parker, M.

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本文描述了如何利用社交媒体、传统媒体和直接邀请作为工具招募6944名研究参与者参加一项关于基因组学的社会科学研究。其任务是收集不同利益攸关方对分享全基因组研究附带发现的意见。这包括招募公众、遗传健康专业人员、基因组研究人员和非遗传健康专业人员。设计了一项新的调查,其中包括10部综合电影;这项调查在网上提供,全世界任何人都可以完成。描述了招募方法,以及方便和滚雪球抽样框架。最成功的策略包括利用社交媒体;Facebook、博客、Twitter、LinkedIn和谷歌广告导致了超过75%的最终样本确定。我们的结论是,所使用的策略成功地在适当参与者的折衷组合中进行了招聘。调查的设计和研究结果分别给出。
This paper offers a description of how social media, traditional media and direct invitation were used as tools for the recruitment of 6,944 research participants for a social sciences study on genomics. The remit was to gather the views of various stakeholders towards sharing incidental findings from whole genome studies. This involved recruiting members of the public, genetic health professionals, genomic researchers and non-genetic health professionals. A novel survey was designed that contained ten integrated films; this was made available online and open for completion by anyone worldwide. The recruitment methods are described together with the convenience and snowballing sampling framework. The most successful strategy involved the utilisation of social media; Facebook, Blogging, Twitter, LinkedIn and Google Ads led to the ascertainment of over 75 % of the final sample. We conclude that the strategies used were successful in recruiting in eclectic mix of appropriate participants. Design of the survey and results from the study are presented separately.