"Everyone has a story to tell": A review of life stories in learning disability research and practice
"Everyone has a story to tell": A review of life stories in learning disability research and practice
复制标题
“每个人都有一个故事要讲”：学习障碍研究与实践中的人生故事回顾
DOI：
10.1111/bld.12388
复制
发表时间：
2021
影响因子：
1.5
通讯作者：
Ledger S
中科院分区：
文献类型：
--
作者：
Ledger S
本文探讨了我们对学习障碍者的生活故事的了解。它的灵感来自一位作者分享的自己的生活故事。它探讨了生活故事是什么。它讨论了生活故事如何帮助我们更多地了解人们的生活和历史。它回顾了我们所知道的学习障碍者如何记录他们的故事，包括有高度支持需求的人。我们知道生活故事可以帮助人们获得良好的支持和以人为本的护理，但我们发现，当生活发生巨大变化时，人们的故事常常会丢失。他们的生活我们发现工作人员可能没有技能或信心来支持人们讲述和记录他们的故事我们认为找出如何利用生活故事来支持更好地照顾更多人非常重要。摘要在本文中，作者回顾了自 20 世纪 60 年代以来学习障碍研究和实践中的生活故事。尽管有一致的证据表明它们在赋予人们超越服务标签的声音和身份方面的价值，但它们并未广泛用于提供健康和社会护理。尽管长期以来政策承诺以人为本的实践，但情况仍然如此。本文探讨了使用生活故事作品可能遇到的障碍，以及如果要在实践中更广泛、更有效地使用它们，还需要进行哪些进一步的研究。
Accessible summaryThis paper considers what we know about the life stories of people with learning disabilities.It was inspired by one of the authors sharing his own life story.It explores what a life story is.It discusses how life stories help us to understand more about people's lives and historyIt reviews what we know about how people with learning disabilities can record their stories, including people with high support needsWe know life stories can help people to get good support and person‐centred careBut we found that people's stories are often lost when there are big changes in their livesWe found that staff may not have the skills or confidence to support people to tell and record their storiesWe think it is important to find out how life stories can be used to support better care for more people.AbstractIn this paper, the authors review life stories in learning disability research and practice since the 1960s. Although there is consistent evidence of their value in giving people a voice and an identity beyond the service label, they are not widely used in the provision of health and social care. This is despite long‐standing policy commitments to person‐centred practice. The paper explores possible barriers to the use of life story work and what further research is needed if they are to be more widely and effectively used in practice.