The Journey: Living Cancer Out Loud Narrative Intervention and Community-Based Participatory Research (CBPR) in Breast Cancer Health Literacy.
The Journey: Living Cancer Out Loud Narrative Intervention and Community-Based Participatory Research (CBPR) in Breast Cancer Health Literacy.
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旅程：乳腺癌健康素养的大声生活癌症叙事干预和基于社区的参与性研究 (CBPR)。
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发表时间：
2015
期刊：
影响因子：
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通讯作者：
Tenisha Baca
中科院分区：
文献类型：
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作者：
O. Davis;Tenisha Baca
将幸存者的叙述数据转化为有效的预防信息和战略，可以在社区内广泛传播的非洲裔美国妇女，表明叙事话语，或故事，作为一种模式的健康素养，可以支持基于文化的健康干预工作。为什么在文化上促进使用叙事表现的健康素养干预很重要？我们的目标有四个方面：（1）突出凤凰城非裔美国人社区乳腺癌幸存者和护理人员的生活经历;（2）通过叙事表演教育观众;（3）通过分享故事提高对乳腺癌筛查，诊断，教育和生存的认识，以及（4）展示叙事表演如何成为乳腺癌健康干预的可行途径。使用社区为基础的前瞻性研究（CBPR）锻造社区驱动的招聘和选择的参与者从联盟的黑人反对乳腺癌（CBBC）。与CBBC进行结构化访谈N = 6：3名幸存者，2名照顾者，1名幸存者和照顾者。每个参与者的结构化面试时间为2.5小时。研究方法来源于幸存者焦点小组和叙事理论框架。访谈数据编码和共同的主题出现在解释性分析。叙述性数据被转化为乳腺健康和预防信息，这些信息将生活经历编码为个人数据。剧本是根据叙事理论精心制作的，并与社区参与者分享决策努力。剧本的改编成为叙事表演的结构化独白，CBBC幸存者和护理人员的声音引导，转变和翻译了叙事干预的发展，命名为“旅程：大声活出癌症”。重要的主题出现在采访中，并作为编写脚本的基础-精神振奋;家庭;克服逆境;头发的故事;分享你的故事/社区;和禁忌。该研究的结论与CBPR过程中的下一个步骤/最佳实践与公开举行的本地演员试镜，在表演后与观众交谈，以及前后测试设计，以评估叙事表演的功效。
Translating survivor narrative data into effective prevention messages and strategies for African American women that can be disseminated widely within the community, shows that narrative discourse, or stories, as a mode of health literacy, can support culture-based health intervention efforts. Why is it important to culturally promote a health literacy intervention using narrative performance? Our goal is fourfold: (1) to highlight the lived experience of breast cancer survivors and caregivers in the African American community of Phoenix, AZ; (2) to educate audiences through narrative performance; (3) to raise awareness of breast cancer screening, diagnosis, education, and survivorship through sharing the story, and (4) to demonstrate how narrative performance can be a viable avenue for breast cancer health intervention. Using Community-based Participatory Research (CBPR) forged community-driven recruitment and selection of participants from Coalition of Blacks Against Breast Cancer (CBBC). Participatory collaboration with CBBC for structured interviews N = 6:3 survivors, 2 caregivers, 1 both survivor, and caregiver. Structured interviews were 2.5 hours per participant. Prompts were derived from survivor focus group and narrative theoretical framework. Interview data was coded and common themes emerged in interpretive analysis. Narrative data were translated into breast health and prevention messages that coded lived experience as personal data. Script was crafted based on narrative theory and shared decision-making efforts with community participants. Adaptation of the script became structured monologues for narrative performance, where the voice of survivors and caregivers of CBBC guided, transformed,and translated the development of the narrative intervention naming it, The Journey: Living Cancer Out Loud. Important themes emerged from interviews and served as a foundation for writing the script—Spiritual uplift; Family; Overcoming adversity; Hair stories; Share your story/community; and Taboo. The study concludes with next steps/best practices in the CBPR process with publically-held auditions of local actors, talk-back with audience at post performance, and pre-post test design to evaluate the efficacy of narrative performance.