Addressing unmet basic needs for children with sickle cell disease in the United States: clinic and staff perspectives.
Addressing unmet basic needs for children with sickle cell disease in the United States: clinic and staff perspectives.
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DOI：
10.1186/s12913-020-06055-y
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发表时间：
2021-01-12
影响因子：
2.8
通讯作者：
Drainoni ML
中科院分区：
文献类型：
--
作者：
Loo S;Brochier A;Wexler MG;Long K;Kavanagh PL;Garg A;Drainoni ML
本研究的目的是评估儿科血液学临床工作人员对解决镰状细胞病（SCD）儿童未满足的基本需求的障碍和促进因素的看法。2019年11月至12月，在美国东北部地区的四个城市儿科血液学诊所举行了六个焦点小组。制定了讨论问题，以配合卫生服务研究实施综合促进行动（i-PARIHS）实施科学框架，重点关注环境和接受者领域，以及诊所如何处理患者群体中健康的不利社会决定因素（SDoH）。采用了总结性内容分析方法来确定数据中的主要主题。我们发现以下主题：(1)残疾儿童的家庭有许多基本需要未获满足；(2)诊所工作人员认为他们在解决这些未被满足的基本需求方面发挥了作用；(3)工作人员认为他们解决家庭未满足的基本需求的能力取决于照顾者对工作人员建议采取行动的能力；(4)诊所工作人员满足这些需求的能力受到组织和系统因素的限制，超出了他们的控制范围。这些发现对于如何最好地解决弱势儿童人群的不良SDoH具有重要意义，从而使城市儿童血液学诊所能够更公平地为家庭提供支持。在线版本包含补充材料，可在10.1186/s12913-020-06055-y获得。
The purpose of this study was to assess pediatric hematology clinic staff’s perspectives regarding barriers and facilitators in addressing unmet basic needs for children with sickle cell disease (SCD). Six focus groups were held at four urban pediatric hematology clinics in the Northeastern region of the United States from November to December 2019. Discussion questions were developed to align with the integrated Promoting Action on Research Implementation in Health Services (i-PARIHS) implementation science framework, focusing on the domains of context and recipient and how clinics address adverse social determinants of health (SDoH) in their patient populations. A summative content analytical approach was taken to identify major themes in the data. We discerned the following themes: (1) families of children with SCD experience numerous unmet basic needs; (2) clinic staff believed they had a role to play in addressing these unmet basic needs; (3) staff felt their ability to address families’ unmet basic needs depended upon caregivers’ capacity to act on staff’s recommendations; and (4) clinic staff’s ability to address these needs was limited by organizational and systemic factors beyond their control. These findings have important implications for how best to address adverse SDoH for this vulnerable pediatric population so that urban-based pediatric hematology clinics can more equitably support families. The online version contains supplementary material available at 10.1186/s12913-020-06055-y.
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影响因子：
3.2
作者：
Hsieh, HF;Shannon, SE
通讯作者：
Shannon, SE
影响因子：
8
作者：
Silverstein, Michael;Lamberto, Jacqueline;DePeau, Kristina;Grossman, David C.
通讯作者：
Grossman, David C.
外行卫生工作者在小儿慢性病中的作用：系统评价。
影响因子：
3.1
作者：
Raphael, Jean L.;Rueda, Anna;Lion, K. Casey;Giordano, Thomas P.
通讯作者：
Giordano, Thomas P.
DOI：
10.1097/mph.0000000000001682
发表时间：
2020-03
期刊：
Journal of pediatric hematology/oncology
影响因子：
--
作者：
Reader SK;Pantaleao A;Keeler CN;Ruppe NM;Kazak AE;Rash-Ellis DL;Wadman J;Miller RE;Deatrick JA
通讯作者：
Deatrick JA
影响因子：
20.3
作者：
Rahimy, MC;Gangbo, A;Alihonou, E
通讯作者：
Alihonou, E