Optimizing communication strategies and designing a comprehensive program to facilitate cascade testing for familial hypercholesterolemia.
Optimizing communication strategies and designing a comprehensive program to facilitate cascade testing for familial hypercholesterolemia.
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DOI：
10.1186/s12913-023-09304-y
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发表时间：
2023-04-05
影响因子：
2.8
通讯作者：
Sturm AC
中科院分区：
文献类型：
--
作者：
Campbell-Salome G;Jones LK;Walters NL;Morgan KM;Brangan A;Ladd IG;McGowan MP;Wilemon K;Schmidlen TJ;Simmons E;Schwartz MLB;McMinn MN;Tricou E;Rahm AK;Ahmed CD;Sturm AC
该项目旨在优化沟通策略，以支持有关家族性高胆固醇血症（FH）的家庭沟通，并提高高危亲属中级联检测的使用率。患有FH的个人和家庭提供了多种策略的反馈，包括：家庭信件，数字化工具和直接联系。从参与者的反馈收集通过二元访谈（n = 11）和调查（n = 98）的沟通策略和他们的建议实施，以提高级联测试的吸收。我们进行了专题分析，以确定如何优化每项战略。我们使用交通灯方法对优化及其在项目医疗保健系统中的实施进行了分类。专题分析为每种传播战略提出了四种不同的优化建议，并提出了七种适用于所有战略的优化建议。还提出了开发全面级联测试程序的四项建议，该程序将提供所有优化的通信策略。纳入所有编码为绿色的优化建议（n = 21）。部分纳入了黄色编码的建议（n = 12）。只有两项建议被标为红色，无法纳入。这个项目演示了如何收集和分析利益相关者对项目设计的反馈。我们确定了可行的建议优化，导致沟通策略，是病人知情和以病人为中心。优化策略在一个全面的级联测试程序中实施。在线版本包含补充材料，可通过10.1186/s12913-023-09304-y获得。
This project aimed to optimize communication strategies to support family communication about familial hypercholesterolemia (FH) and improve cascade testing uptake among at-risk relatives. Individuals and families with FH provided feedback on multiple strategies including: a family letter, digital tools, and direct contact. Feedback from participants was collected via dyadic interviews (n = 11) and surveys (n = 98) on communication strategies and their proposed implementation to improve cascade testing uptake. We conducted a thematic analysis to identify how to optimize each strategy. We categorized optimizations and their implementation within the project’s healthcare system using a Traffic Light approach. Thematic analysis resulted in four distinct suggested optimizations for each communication strategy and seven suggested optimizations that were suitable across all strategies. Four suggestions for developing a comprehensive cascade testing program, which would offer all optimized communication strategies also emerged. All optimized suggestions coded green (n = 21) were incorporated. Suggestions coded yellow (n = 12) were partially incorporated. Only two suggestions were coded red and could not be incorporated. This project demonstrates how to collect and analyze stakeholder feedback for program design. We identified feasible suggested optimizations, resulting in communication strategies that are patient-informed and patient-centered. Optimized strategies were implemented in a comprehensive cascade testing program. The online version contains supplementary material available at 10.1186/s12913-023-09304-y.
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影响因子：
5
作者：
Collier, D;Mahoney, J
通讯作者：
Mahoney, J
影响因子：
2.7
作者：
Hardcastle, Sarah J.;Legge, Ellen;Hagger, Martin S.
通讯作者：
Hagger, Martin S.
影响因子：
4.4
作者：
Benson, Gretchen;Witt, Dawn R.;Gulati, Martha
通讯作者：
Gulati, Martha
影响因子：
7.4
作者：
Lee, Christopher;Rivera-Valerio, Miriannie;Kullo, Iftikhar J.
通讯作者：
Kullo, Iftikhar J.
DOI：
10.1038/gim.2015.187
发表时间：
2016-09
期刊：
Genetics in medicine : official journal of the American College of Medical Genetics
影响因子：
--
作者：
Carey DJ;Fetterolf SN;Davis FD;Faucett WA;Kirchner HL;Mirshahi U;Murray MF;Smelser DT;Gerhard GS;Ledbetter DH
通讯作者：
Ledbetter DH