ACTIVITY AND PARTICIPATION OF CHILDREN AND ADOLESCENTS WITH UNILATERAL CONGENITAL BELOW ELBOW DEFICIENCY: AN ONLINE FOCUS GROUP STUDY
ACTIVITY AND PARTICIPATION OF CHILDREN AND ADOLESCENTS WITH UNILATERAL CONGENITAL BELOW ELBOW DEFICIENCY: AN ONLINE FOCUS GROUP STUDY
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DOI：
10.2340/16501977-1027
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发表时间：
2012-10-01
影响因子：
3.5
通讯作者：
van der Sluis, Corry K.
中科院分区：
文献类型：
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作者：
de Jong, Ingrid G. M.;Reinders-Messelink, Heleen A.;van der Sluis, Corry K.
目的：评估是否儿童/青少年与单侧先天性肘下缺陷的经验活动或参与的局限性，以及他们如何处理这些limitations.Methods：一个定性研究，使用在线焦点小组访谈与42名儿童/青少年（在3个年龄组：8-12，13-16，和17-20岁），17名家长和19名卫生专业人员。发布了关于活动、参与、假肢使用、心理社会功能和康复护理的问题。这项研究涉及的前两个主题;活动和participation.Results：儿童/青少年只经历了一些限制，有没有活动或参与的情况下，是不可能的。所遇到的限制主要可归因于环境因素，例如人们对儿童的能力缺乏了解。这些因素在过渡阶段尤其具有决定性。儿童/青少年和家长介绍了为解决这一问题而采取的许多战略。专业人士描述了较少的策略，并强调使用自适应设备和假体比其他participatorydo.Conclusion：有单侧先天性肘关节以下的缺陷并没有干扰任何活动，但不是所有的儿童/青少年有能力进行所有活动。儿童/青少年在管理其缺陷方面所描述的策略应通过提供有关各种创造性解决方案和自适应装置和假体的可能性的现实教育纳入医疗保健，并应与具体培训相结合。
Objective: To assess whether children/adolescents with unilateral congenital below elbow deficiency experience activity or participation limitations and how they deal with those limitations.Methods: A qualitative study using online focus group interviews was held with 42 children/adolescents (in 3 age groups: 8-12, 13-16, and 17-20 years), 17 parents and 19 health professionals. Questions were posted concerning activities, participation, prosthetic use, psychosocial functioning, and rehabilitation care. This study concerns the first two topics; activities and participation.Results: Children/adolescents experienced only a few limitations, and there were no activities or participation situations that were impossible. The limitations experienced could be attributed mainly to environmental factors, e.g. people who lack knowledge of the child's capacities. Those factors were particularly decisive in transition phases. Children/adolescents and parents described numerous strategies applied to deal with the deficiency. Professionals described fewer strategies and emphasized the use of adaptive devices and prostheses more than other participants did.Conclusion: Having unilateral congenital below elbow deficiency did not interfere with any activity, but not all children/adolescents had the ability to perform all activities. The strategies described by children/adolescents in managing their deficiency should be integrated into healthcare by providing realistic education about the various creative solutions and possibilities of adaptive devices and prostheses, and should be combined with specific training.