Coping with fibromyalgia -: A qualitative study
Coping with fibromyalgia -: A qualitative study
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DOI：
10.1111/j.1471-6712.2000.tb00558.x
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发表时间：
2000-01-01
影响因子：
1.9
通讯作者：
Carlsson, SG
中科院分区：
文献类型：
--
作者：
Hallberg, LRM;Carlsson, SG
这项研究旨在从纤维肌痛患者自身的角度描述他们不得不与慢性疼痛生活在一起的经历以及他们如何管理自己的情况。样本包括22名女性患者(年龄22-60岁)。开放式深度访谈采用扎根理论的传统方法进行分析。以数据为基础的三个描述性类别被标记为主观疼痛语言、多样化疼痛应对和疼痛交流。这些描述性的范畴形成了更高层次的、或核心的、专注于疼痛的概念。不得不忍受慢性疼痛似乎包括患者变得以自我为中心，全神贯注于疼痛：疼痛大多存在，并影响生活的方方面面，导致对疼痛的持续认识和应对。疼痛往往会扰乱正常生活，需要关注，而且很难摆脱。尽管应对不应以好与坏来衡量，但在本研究样本中占主导地位的被动、逃避行为和听天由命/灾难式的应对可能会对社会和心理功能产生负面影响。纤维肌痛患者可能会从应对疼痛的心理支持和加强健康行为中受益。
This study aims to describe, from the perspective of patients with fibromyalgia themselves, their experiences of having to live with chronic pain and how they manage their situation. The sample consists of 22 female patients (22-60 years). Open-ended in-depth interviews were analysed by a method directed by the tradition of Grounded Theory. Three descriptive categories were grounded in the data, labelled subjective pain language, diversified pain coping, and pain communication. These descriptive categories formed the higher-order, or core, concept preoccupied with pain. Having to live with chronic pain seems to include that the sufferer becomes self-centred and preoccupied with the pain: the pain is mostly present and affects every aspect of life, leading to a continuous awareness of and coping with the pain. Pain tends to interrupt normal life, demands attention and is difficult to disengage from. Although coping should not be evaluated in terms of good and bad, passivity, escape behaviours, and resignation/catastrophizing, which dominated in the present study sample, might affect social and psychological functioning negatively. Patients with fibromyalgia might benefit from psychological support in coping with their pain and from reinforcement of healthy behaviours.