Using Decentralized Identifiers and InterPlanetary File System to Create a Recoverable Rare Disease Patient Identity Framework
Using Decentralized Identifiers and InterPlanetary File System to Create a Recoverable Rare Disease Patient Identity Framework
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DOI：
10.1145/3608298.3608325
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发表时间：
2023-05
期刊：
影响因子：
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通讯作者：
Sean Mchale;Lincoln Murr;Peng Zhang
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文献类型：
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作者：
Sean Mchale;Lincoln Murr;Peng Zhang
本文提出了一种新颖的框架，用于使用区块链和智能合约、去中心化标识符（DID）和星际文件系统（IPFS）创建可恢复的罕见疾病患者身份系统。智能合约是可执行代码，可以写入区块链等分散存储中，以实现防篡改数据交易。DID提供了一种安全、分散和可扩展的方式来创建、存储和管理数字身份，而IPFS则为患者身份提供了一种分布式、不可变和安全的存储系统。利用这些技术和智能合约，我们创建了一个框架来存储患者的持久医疗记录。智能合约还允许在不使用任何集中式权限的情况下恢复帐户。该框架提供了一个标准化的身份层，确保医疗保健提供者能够正确和安全地访问患者的数据。本文探讨了使用去中心化身份系统的优势，并强调了这种方法在提高罕见病患者医疗记录的安全性和通用性方面的潜力。
This paper presents a novel framework for creating a recoverable rare disease patient identity system using blockchain and smart contracts, decentralized identifiers (DIDs), and the InterPlanetary File System (IPFS). Smart contracts are executable code that can be written into decentralized storage such as blockchains to enable tamper-proof data transactions. DIDs provide a secure, decentralized, and extensible way to create, store, and manage digital identities, while IPFS provides a distributed, immutable, and secure storage system for patient identities. Utilizing these technologies with smart contracts, we created a framework to store persistent medical records of patients. Smart contracts additionally allow account recovery without the use of any centralized authority. The framework provides a standardized identity layer that ensures healthcare providers have correct and secure access to a patient’s data. The paper explores the advantages of using a decentralized identity system and highlights the potential of this approach to improve the security and universality of medical records for patients with rare diseases.