Provision of Palliative and Hospice Care to Children in the Community: A Population Study of Hospice Nurses
Provision of Palliative and Hospice Care to Children in the Community: A Population Study of Hospice Nurses
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DOI：
10.1016/j.jpainsymman.2018.10.509
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发表时间：
2019-02-01
影响因子：
4.7
通讯作者：
Baker, Justin N.
中科院分区：
文献类型：
--
作者：
Kaye, Erica C.;Gattas, Melanie;Baker, Justin N.
上下文在美国，每年大约有50万儿童患有限制生命的疾病，其中许多人每年都有资格接受临终关怀。然而，很少有临终关怀机构提供正式的儿科项目。确定临终关怀护士在社区中为儿童和家庭提供护理的经验和舒适度水平。一个横断面调查，以评估临终关怀护士的经验/舒适度的症状管理，临终关怀，目标的护理，以家庭为中心的护理，和丧亲之痛的领域。该调查是试点测试，并分发给临终关怀护士在三州地区。共有71家临终关怀机构的551名受访者完成了调查。大多数护士报告没有接受过儿科姑息治疗或临终关怀培训（89.8%），
Context. Approximately 500,000 children in the United States suffer from life-limiting illnesses each year, many of whom are hospice eligible each year. Few hospice agencies, however, offer formal pediatric programs.Objective. To determine the levels of experience and comfort of hospice nurses who provide care to children and families in the community.Methods. A cross-sectional survey was developed to assess hospice nurse experience/comfort across the domains of symptom management, end-of-life care, goals of care, family-centered care, and bereavement. The survey was pilot tested and distributed to hospice nurses across a tristate region.Results. A total of 551 respondents across 71 hospices completed surveys. The majority of nurses reported no training in pediatric palliative or hospice care (89.8%), with approximately half reporting