What do patients with prostate or breast cancer want from an Internet site? A qualitative study of information needs
What do patients with prostate or breast cancer want from an Internet site? A qualitative study of information needs
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DOI：
10.1016/s0738-3991(03)00116-2
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发表时间：
2004-04-01
影响因子：
3.5
通讯作者：
Ziebland, S
中科院分区：
文献类型：
--
作者：
Rozmovits, L;Ziebland, S
该研究旨在探讨癌症患者的信息需求，征求他们对基于互联网的健康信息的看法，并考虑DIPEX网站是否会解决乳腺癌或前列腺癌患者的特定未满足的信息需求。首先进行了重点小组讨论，以确定信息需求。参与者是通过英国的四个乳腺癌和前列腺癌支持团体招募的。在焦点小组之后进行了个人访谈，参与者在访谈中被展示DIPEX，并被要求搜索与癌症患者关注的问题相关的材料。受访者表示，他们的信息需求很复杂，随着时间的推移而变化，而他们得到的信息往往是不完整的，不一致的，矛盾的和随意的。从其他病人那里获得实际和经验信息的机会受到高度重视。那些有使用互联网经验的人表示明显倾向于非商业性的健康信息网站。与大学或知名医疗中心等认可的卓越中心相连的地点也是首选。受访者意识到从互联网上获取健康信息可能存在的陷阱，并经常在相信之前比较几个来源的信息。（C）2003爱思唯尔科学爱尔兰有限公司。保留所有权利。
The study aimed to explore the information needs of cancer patients, to solicit their views of Internet-based health information and to consider whether the DIPEx website would have addressed specific unmet information needs of people with breast or prostate cancer. Focus groups were conducted first to identify information needs. Participants were recruited through four breast and prostate cancer support groups in the UK. Individual interviews, in which participants were shown DIPEx and asked to search for material related to concerns that had been important to them as cancer patients, were conducted after the focus groups.Respondents said their information needs had been complex and changed over time while the information they had been given was often patchy, inconsistent, contradictory and haphazard. Access to practical and experiential information from other patients was highly valued. Those with experience of using the Internet expressed a clear preference for non-commercial sites for health information. Sites attached to recognised centres of excellence such as universities or well-known medical centres were also preferred. Respondents were aware of the possible pitfalls of taking health information from the Internet and often compared information from several sources before believing it. (C) 2003 Elsevier Science Ireland Ltd. All rights reserved.