Parental readiness for the transition to adulthood of children with a chronic disease

Parental readiness for the transition to adulthood of children with a chronic disease
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DOI:
10.1016/j.pedn.2022.12.024
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发表时间:
2023-01-13
影响因子:
2.4
通讯作者:
Furuya, Kayuri
Furuya, Kayuri
中科院分区:
医学3区
文献类型:
--
作者:
Ozawa, Noriko;Shibayama, Taiga;Furuya, Kayuri

文献摘要

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目的:调查日本儿童慢性病患者中父母对子女成年期的准备情况。设计和方法:在这项横断面研究中,在一家儿科门诊医院就诊的慢性病儿童的父母完成了一份匿名的自填式问卷,以调查人口统计学和父母对儿童成年期的准备情况。结果:共有179名家长回答了问卷调查。在这些人中,60%的人确认知道和了解他们孩子的疾病和与他们孩子的治疗。他们还认为并接受了这样一个事实,即他们的孩子总有一天会从儿科转到成人科。超过一半的父母与孩子讨论孩子的兴趣,如果孩子的选择与父母的意见不同,他们会相互讨论。
Purpose: To investigate parental readiness for their child's transition to adulthood among pediatric patients with chronic disease in Japan.Design and methods: In this cross-sectional study, parents of children with chronic diseases attending a pediatric outpatient hospital completed an anonymous self-administered questionnaire to investigate demographics and parental readiness for children's transition to adulthood. Logistic regression analysis was conducted to determine whether parents' readiness differed according to their children's disease types.Results: A total of 179 parents responded to the survey. Of these, 60% confirmed awareness and knowledge of their children's disease and treatment with their children. They also thought and accepted that there would be a time when their children would move from pediatrics to an adult department. More than half of parents had discussions with their children about the children's interests and would discuss with each other if their children's choice differed from the parents' opinion.