Smarthealth technology study protocol to improve relationships between older adults with dementia and family caregivers

Smarthealth technology study protocol to improve relationships between older adults with dementia and family caregivers
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改善老年痴呆症患者与家庭照顾者之间关系的Smarthealth技术研究方案

DOI:
10.1111/jan.14714
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发表时间:
2021-02-11
影响因子:
3.8
通讯作者:
Stankovic, John
Stankovic, John
中科院分区:
医学3区
文献类型:
--
作者:
Rose, Karen M.;Gordon, Kristina Coop;Stankovic, John

文献摘要

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目的本研究的目的是开发一个智能健康系统的监测,建模和交互式推荐解决方案设计本描述性研究采用单组,非随机试验,以检查功能,有效性,可行性,方法对30例Alzheimer病或相关痴呆患者及其家庭照顾者进行问卷调查(N = 30对)将接收并在家中安装Smarthealth技术。将有一个为期1个月的观察阶段,用于收集基线情绪状态,并有一个为期2个月的实施阶段,在此阶段,护理人员将为每个检测到的负面情绪状态接受压力管理技术。护理人员将报告技术实施和有效性,通过生态瞬时评估系统发送到研究提供的智能手机。护理人员将提供每日自我报告的情绪和健康评级。将在基线和3个月时完成测量护理人员对破坏性行为及其对护理人员影响的评估;护理人员抑郁症状、焦虑和压力;护理人员紧张;和家庭功能的工具。该研究于2018年获得资助,并于2019年获得伦理委员会批准。本研究的结果将有助于开发和改进Smarthealth推荐系统,并确定其有用性,可行性,影响所讨论的Smarthealth技术将为痴呆症患者及其家庭照顾者提供在老年人可能会经历越来越高的孤立和焦虑率,而照顾者二人组可能会经历高度的关系紧张的情况下,家庭减压资源。试验注册本研究在Clinical www.example.com注册Trials.gov(标识符NCT 04536701)。
Aim The aim of this study is to develop a Smarthealth system of monitoring, modelling, and interactive recommendation solutions (for caregivers) for in-home dementia patient care that focuses on caregiver-patient relationships.Design This descriptive study employs a single-group, non-randomized trial to examine functionality, effectiveness, feasibility, and acceptability of the novel Smarthealth system.Methods Thirty persons with Alzheimer's Disease or related dementia and their family caregivers (N = 30 dyads) will receive and install Smarthealth technology in their home. There will be a 1-month observation phase for collecting baseline mood states and a 2-month implementation phase when caregivers will receive stress management techniques for each detected, negative mood state. Caregivers will report technique implementation and usefulness, sent via Ecological Momentary Assessment system to the study-provided smartphone. Caregivers will provide daily, self-reported mood and health ratings. Instruments measuring caregiver assessment of disruptive behaviours and their effect on caregivers; caregiver depressive symptoms, anxiety and stress; caregiver strain; and family functioning will be completed at baseline and 3 months. The study received funding in 2018 and ethics board approval in 2019.Discussion This study will develop and test novel in-home technology to improve family caregiving relationships. Results from this study will help develop and improve the Smarthealth recommendation system and determine its usefulness, feasibility, and acceptability for persons with dementia and their family caregiver.Impact The Smarthealth technology discussed will provide in-home stress reduction resources at a time when older adults may be experiencing increasingly high rates of isolation and anxiety and caregiver dyads may be experiencing high levels of relationship strain.Trial Registration This study was registered with Clinical Trials.gov (Identifier NCT04536701).