Paediatric parenting stress in inflammatory bowel disease: application of the Pediatric Inventory for Parents
Paediatric parenting stress in inflammatory bowel disease: application of the Pediatric Inventory for Parents
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DOI：
10.1111/j.1365-2214.2010.01200.x
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发表时间：
2012-03-01
影响因子：
1.9
通讯作者：
Hommel, K. A.
中科院分区：
文献类型：
--
作者：
Guilfoyle, S. M.;Denson, L. A.;Hommel, K. A.
青少年管理炎症性肠病（IBD）的照顾者的心理社会功能尚未得到充分研究;然而，不良的照顾者功能可能会使青少年处于疾病管理受损的风险之中。目前的研究通过检查IBD青少年的照顾者样本来解决这一限制。研究目的包括：（1）记录儿童亲职压力的发生率;（2）识别亲职压力的社会人口学预测因子;以及（3）将先前公布的养育压力的比率与其他儿科慢性疾病（包括癌症、1型糖尿病、肥胖症、镰状细胞病）的比率进行比较，膀胱外翻。方法患有IBD诊断的青少年的照顾者（法师= 15.4 +/- 1.4，44.4%为女性，88.7%白人）和在胃肠病诊所接受三级护理（n = 62）完成了父母儿科问卷（PIP）作为衡量儿科育儿压力的一个指标，PIP分量表包括频率和难度。儿科胃肠病学家提供疾病严重程度assessments.Results青少年IBD经历相对温和的疾病活动。相关分析显示PIP困难与克罗恩病严重程度呈正相关（r = 0.38，P < 0.01）。照顾者年龄与父母压力总分（r =-0.25，P = 0.05）和沟通得分（r =-0.25，P = 0.05）呈负相关。IBD样本内的频率和困难的养育压力是相似的1型糖尿病内的利率，但显着低于其他儿科慢性conditions.Conclusions IBD的青少年的照顾者似乎经历了低利率的养育压力时，他们的青少年正在接受门诊治疗，并在IBD相对不活跃的阶段。IBD家庭的社会人口学特征（i. e.主要是白人，受过良好教育和较高的社会经济地位）可能会鼓励获得更多的财政和心理社会资源，这可能有助于促进更优化的压力管理。
Background The psychosocial functioning of caregivers of adolescents managing inflammatory bowel disease (IBD) has been understudied; yet, poor caregiver functioning can place youth at risk for compromised disease management. The current study addressed this limitation by examining a sample of caregivers of adolescents with IBD. Study aims included (1) documenting rates of paediatric parenting stress; (2) identifying associated sociodemographic predictors of parenting stress; and (3) comparing previously published rates of parenting stress to those within other paediatric chronic conditions, including cancer, type 1 diabetes, obesity, sickle cell disease, bladder exstrophy.Methods Caregivers of adolescents with an IBD diagnosis (Mage = 15.4 +/- 1.4, 44.4% female, 88.7% Caucasian) and receiving tertiary care within a gastroenterology clinic (n = 62) completed the Pediatric Inventory for Parents (PIP) as a measure of paediatric parenting stress with frequency and difficulty as PIP subscales. Paediatric gastroenterologists provided disease severity assessments.Results Adolescents with IBD were experiencing relatively mild disease activity. Bivariate correlations revealed that PIP-difficulty was positively associated with Crohn's disease severity (r = 0.38, P < 0.01). Caregiver age was negatively associated with the frequency of parenting stress total (r = -0.25, P = 0.05) and communication scores (r = -0.25, P < 0.05). The frequency and difficulty of parenting stressors within the IBD sample were similar to rates within type 1 diabetes, but were significantly lower than rates identified in other paediatric chronic conditions.Conclusions Caregivers of adolescents with IBD seem to experience low rates of parenting stress when their adolescents are receiving outpatient care and during phases of IBD relative inactivity. The sociodemographic characteristics of IBD families (i. e. primarily Caucasian, well-educated and higher socio-economic status) likely encourage greater access to financial and psychosocial resources, which may aid in promoting more optimal stress management.