Development and implementation of 'A guide to PPIE-Early Integration into Research Proposals' in a multi-disciplinary consortium.
Development and implementation of 'A guide to PPIE-Early Integration into Research Proposals' in a multi-disciplinary consortium.
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在多学科联盟中制定和实施“PPIE 早期融入研究计划指南”。
DOI：
10.1093/rheumatology/kead482
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发表时间：
2023
期刊：
影响因子：
--
通讯作者：
Beesley R
中科院分区：
文献类型：
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作者：
Beesley R
亲爱的编辑，患者和公众参与和参与（PPIE）是研究的关键部分，从早期研究设计到结果的传播。在研究设计的早期阶段，PPIE输入的重要性是显著的，并且在整个研究界越来越多地得到认可，大多数资助者现在要求在资助申请中提供有意义的PPIE证据[1]。其好处包括更多以患者为导向的研究目标，并建立一个向公众传播研究结果的通信网络。因此，PPIE是提供有效，有影响力的研究的基本组成部分。已经开发了几种方法，使患者密切参与研究[2，3]。以前的出版物提出了制定患者参与计划时要考虑的关键因素[4];然而，如何最好地实现这一点的机制定义得不太清楚。研究人员在与患者和非专业合作伙伴合作时，仍然需要一步一步的实践指导，以减少理解的不平衡，认识到非科学参与者的价值，并确保患者的声音和观点得到代表。在这里，我们描述的方法内采取的集群财团。
DEAR EDITOR, Patient and Public Involvement and Engagement (PPIE) is a critical part of research, from early study design through to dissemination of results. The importance of PPIE input in the early phases of research design is significant and increasingly recognized throughout the research community, with most funders now requiring evidence of meaningful PPIE in grant applications [1]. Benefits include more patient-oriented research goals and creating a communication network for dissemination of study findings to the public. Thus, PPIE forms a fundamental part of delivering effective, impactful research. Several approaches have been developed to involve patients closely in research [2, 3]. Previous publications have proposed key factors to consider when developing patient involvement plans [4]; however, mechanisms for how best to achieve this are less clearly defined. There remains a need for step-by-step practical guidance for researchers to follow when working with patients and lay partners to reduce an imbalance of understanding, to recognize the value of non-scientific participants, and to ensure the voices and views of patients are represented. Here we describe the approach taken within the CLUSTER Consortium.