Perspectives of carers on medication management in dementia: lessons from collaboratively developing a research proposal.
Perspectives of carers on medication management in dementia: lessons from collaboratively developing a research proposal.
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DOI：
10.1186/1756-0500-7-463
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发表时间：
2014-07-21
影响因子：
1.8
通讯作者：
Maidment ID
中科院分区：
文献类型：
--
作者：
Poland F;Mapes S;Pinnock H;Katona C;Sorensen S;Fox C;Maidment ID
护理人员需要管理社区痴呆症患者的药物相关问题，这引发了困境，护理人员和痴呆症患者可以将其确定为制定护理人员相关研究项目的关键问题。在阿尔茨海默氏症协会的国家办公室举行了一个研究规划公共患者参与（PPI）研讨会，采用适应焦点小组方法，涉及痴呆症患者的护理人员，他们是阿尔茨海默氏症协会研究网络（ASRN）的现任成员，与卫生专业人员对话，旨在从护理人员的角度确定与痴呆症药物管理有关的关键问题。该小组由一名专业精神健康药剂师提供便利，使用与护理人员，卫生专业人员和研究人员系统开发的主题指南。当时进行了录音和实地记录，并按专题进行了转录和分析。参与者包括9名护理人员，以及DeNDRoN（痴呆症和神经退行性疾病研究网络）和阿尔茨海默氏症协会的学者，临床医生和工作人员。研讨会上出现的护理人员的重要主题涉及：（1）药物使用和管理的实用性，（2）沟通障碍和促进者，（3）承担和分担责任，（4）权衡药物的风险和益处。这些可以形成更深入的定性研究的基础，涉及更广泛，更多样化的样本。支持的讨论，使照顾者的声音和观点被表达出来，并被链接到确定的过程中的药物管理的问题，直接经历的照顾者。这被用来通知研究提案的议程，这将是有意义的照顾者和痴呆症患者。
The need for carers to manage medication-related problems for people with dementia living in the community raises dilemmas, which can be identified by carers and people with dementia as key issues for developing carer-relevant research projects. A research planning Public Patient Involvement (PPI) workshop using adapted focus group methodology was held at the Alzheimer’s Society’s national office, involving carers of people with dementia who were current members of the Alzheimer’s Society Research Network (ASRN) in dialogue with health professionals aimed to identify key issues in relation to medication management in dementia from the carer viewpoint. The group was facilitated by a specialist mental health pharmacist, using a topic guide developed systematically with carers, health professionals and researchers. Audio-recordings and field notes were made at the time and were transcribed and analysed thematically. The participants included nine carers in addition to academics, clinicians, and staff from DeNDRoN (Dementias and Neurodegenerative Diseases Research Network) and the Alzheimer’s Society. Significant themes, for carers, which emerged from the workshop were related to: (1) medication usage and administration practicalities, (2) communication barriers and facilitators, (3) bearing and sharing responsibility and (4) weighing up medication risks and benefits. These can form the basis for more in-depth qualitative research involving a broader, more diverse sample. The supported discussion enabled carer voices and perspectives to be expressed and to be linked to the process of identifying problems in medications management as directly experienced by carers. This was used to inform an agenda for research proposals which would be meaningful for carers and people with dementia.