Impact of Caring for a Child With Cancer on Parents' Health-Related Quality of Life
Impact of Caring for a Child With Cancer on Parents' Health-Related Quality of Life
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DOI：
10.1200/jco.2007.15.2835
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发表时间：
2008-12-20
影响因子：
45.3
通讯作者：
Sung, Lillian
中科院分区：
文献类型：
--
作者：
Klassen, Anne F.;Klaassen, Robert;Sung, Lillian
PurposeTo比较健康相关的生活质量（QOL）的父母的孩子谁是正在接受治疗的癌症与加拿大人口的规范，并确定重要的父母和孩子的父母QOL.Patients和MethodsA预测因子共411名受访者的513名合格的父母被招募从五个儿科肿瘤中心在加拿大2004年11月至2007年2月。父母被要求完成一份问卷小册子，其中包括成人生活质量（SF-36）的测量，儿童健康状况的测量（功能状态IIR）和评估促进健康的自我保健行动的问题（如睡眠、饮食和运动习惯）和癌症儿童的特征（如复发状态、自诊断以来的时间、预后、治疗强度）。癌症儿童的父母在所有心理社会领域的身体和心理社会生活质量较差（效应量范围，-0.71至-1.58）和大多数身体健康领域（效应量范围，-0.08至-0.63）。与较好的父母生活质量相关的父母特征包括更好的饮食，运动和睡眠习惯，年龄较小和收入较高。与更好的父母生活质量的儿童特征包括更好的儿童健康状况（功能状态IIR评分），较低的治疗强度，和较长的时间，因为diagnosis.ConclusionParents癌症儿童的报告较差的生活质量与人口规范。针对父母的干预措施应作为癌症儿童治疗计划的一部分。与父母生活质量较差相关的可修改变量，如睡眠质量、饮食和运动习惯，表明这些父母最有可能经历较差的生活质量，可能是潜在的干预领域。
PurposeTo compare the health-related quality of life ( QOL) of parents of children who are undergoing treatment for cancer with that of Canadian population norms and to identify important parent and child predictors of parental QOL.Patients and MethodsA total of 411 respondents of 513 eligible parents were recruited from five pediatric oncology centers in Canada between November 2004 and February 2007. Parents were asked to complete a questionnaire booklet that included a measure of adult QOL ( SF-36), a measure of child health status ( functional status IIR), and questions to assess health-promoting self-care actions ( eg, sleep, diet, and exercise habits) and characteristics of the child with cancer ( eg, relapse status, time since diagnosis, prognosis, treatment intensity).ResultsCompared with population norms, parents of children with cancer reported poorer physical and psychosocial QOL in all psychosocial domains ( effect sizes range, -0.71 to -1.58) and in most physical health domains ( effect sizes range, -0.08 to -0.63). Parent characteristics associated with better parental QOL included better eating, exercise and sleep habits, younger age, and higher income. Child characteristics associated with better parental QOL included better child health status ( functional status IIR scores), lower treatment intensity, and longer time since diagnosis.ConclusionParents of children with cancer report poorer QOL compared with population norms. Interventions directed at parents should be included as part of the treatment plan for a child with cancer. Modifiable variables associated with poorer parental QOL, such as sleep quality and diet and exercise habits, indicate those parents most likely to experience poor QOL and may be potential areas for intervention.