Support for Living a Meaningful Life with Osteoarthritis: A Patient-to-Patient Research Study
Support for Living a Meaningful Life with Osteoarthritis: A Patient-to-Patient Research Study
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DOI：
10.1007/s40271-016-0169-9
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发表时间：
2016-10-01
影响因子：
3.6
通讯作者：
Marshall, Deborah Anne
中科院分区：
文献类型：
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作者：
Miller, Jean Louise;Teare, Sylvia Ruth;Marshall, Deborah Anne
目的探讨骨关节炎（OA）患者对现有支持与其需求之间的差距的看法，重点关注患者的经验和对他们来说重要的事情。这是一个关键组成部分的研究计划，共同开发一个循证模型，从初级到专科护理关节炎patients.Methods与OA患者和培训的参与方法采用适应定性方法共同设计和进行研究。OA患者（N = 25）参加了一个三步同行的过程：一个焦点小组澄清和探讨的主题（“集”），并指导创建在第二阶段（“收集”）使用的采访指南。通过协作分析过程，研究人员确定了八个概念，然后将其带到最后一个焦点小组（“反思”）。在这里，与会者回顾了调查结果，确定在阿尔伯塔，加拿大关节炎护理的影响。结果一个总体主题“支持我们在管理一个有意义的生活与OA”是由三个组成部分的质量护理的基础上：（1）正确的知识，具体和详细的知识和信息;（2）正确的专业支持，不断获得卫生专业人员与OA的专业知识;和（3）正确的专业关系，一个伙伴关系，与卫生专业人员谁帮助他们制定和修改个人自我管理plannes.Conclusion同行研究通知和挑战的研究团队和利益相关者考虑需要上游支持OA患者。研究结果有助于改变关节炎护理，将卫生系统从急性发作模式转变为满足越来越多慢性病患者需求的模式。
Objective This study addresses the perspectives of patients with osteoarthritis (OA) about the gap between available support and their needs, with a focus on patient experience and what is important to them. It was a key component of a research initiative to co-develop an evidence-based model for central referral from primary to specialty care for arthritis patients.Methods Patients with OA and trained in engagement methods used adapted qualitative methods to co-design and conduct the study. OA patients (N = 25) participated in a three-step peer-to-peer process: a focus group clarified and explored the topic ("set"), and guided the creation of the interview guide used in the second phase ("collect"). Using a collaborative analysis process, the researchers identified eight concepts that they then brought to a last focus group ("reflect"). Here, participants reviewed the findings, identifying implications for arthritis care in Alberta, Canada.Results An overarching theme of "supporting us in managing a meaningful life with OA" was underpinned by three components of quality care: (1) right knowledge-specific and detailed knowledge and information; (2) right professional support-ongoing access to health professionals with OA expertise; and (3) right professional relationship-a partnership with health professionals who help them develop and revise personal self-management plans.Conclusion Peer-to-peer research informed and challenged the research team and stakeholders to consider the need for upstream support for OA patients. Results are helping to transform arthritis care, shifting the health system from an acute episodic model to one that meets the needs of the growing number of patients with chronic diseases.