Importance of Group Therapeutic Support for Family Members of Children with Alopecia Areata: A Cross-Sectional Survey Study

Importance of Group Therapeutic Support for Family Members of Children with Alopecia Areata: A Cross-Sectional Survey Study
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DOI:
10.1111/pde.13176
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发表时间:
2017-07-01
影响因子:
1.5
通讯作者:
Farah, Ronda S.
Farah, Ronda S.
中科院分区:
医学4区
文献类型:
--
作者:
Aschenbeck, Kelly A.;McFarland, Sarah L.;Farah, Ronda S.

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背景/目的斑秃(AA)的心理影响是有据可证的,但群体互动可能有助于减轻这种负担。我们的目的是确定吸引AA患者及其家属参加集体活动的因素。方法在2015年和2016年的年度斑秃保龄球协会上进行调查。这次活动是一个独特的机会,让AA儿童和他们的家人认识其他患有这种疾病的人,并与来自国家斑秃基金会明尼苏达州分会的当地支持小组资源建立联系。2015年和2016年的数据被合并。亚组间比较采用Fisher精确检验表示反应频率和百分比,采用双样本t检验表示平均值。结果参与研究的男女人数相等(n = 13)。平均年龄为41.1岁。不同年龄和性别的调查结果差异无统计学意义(p < 0.05)。23名(88.5%)与会者寻求通过AA与他人联系,并在活动期间会见了三个或更多的人。17人(65.4%)还参加了其他支持小组活动。12名受访者(46.2%)是为了支持朋友或家人而来。百分之百的参与者认为与嗜酒者互戒会的人交往很重要。结论小组互动是嗜酒成瘾者及其家庭治疗支持的重要来源。
Background/ObjectivesThe psychological effect of alopecia areata (AA) is well documented, but group interaction may help lessen this burden. We aimed to determine factors that draw patients with AA and their families to group events.MethodsSurveys were administered at the annual alopecia areata bowling social in 2015 and 2016. This event is a unique opportunity for children with AA and their families to meet others with the disease and connect with local support group resources from the Minnesota branch of the National Alopecia Areata Foundation. Data from 2015 and 2016 were combined. Comparisons of subgroups were performed using Fisher exact tests for response frequencies and percentages and two-sample t tests for mean values.ResultsAn equal number of men and women participated in the study (n = 13 each). The average age was 41.1 years. There were no significant differences (p > 0.05) in survey responses based on respondent age or sex. Twenty-three (88.5%) attendees sought to connect with others with AA and met three or more people during the event. Seventeen (65.4%) also attended other support group events. Twelve respondents (46.2%) came to support a friend or family member. One hundred percent of attendees identified socializing with others with AA as important.ConclusionsGroup interaction is an important source of therapeutic support for people with AA and their families.